Total number of respondents n | 1685 |
What is your age group? | |
18–30 years | 24 (1.4) |
31–50 years | 287 (17.0) |
51–60 years | 452 (26.8) |
61–70 years | 520 (31.4) |
>70 years | 393 (23.3) |
Not reported | 9 (0.1) |
Gender | |
Women | 1229 (72.9) |
Men | 450 (26.7) |
Not reported | 6 (0.4) |
Have you ever been told about PR by your healthcare provider? | |
Yes | 1009 (59.9) |
No | 614 (36.4) |
Not sure | 62 (3.7) |
Has a healthcare provider ever discussed the benefits of PR with you? | |
Yes | 939 (55.7) |
No | 702 (41.7) |
Not sure | 41 (2.4) |
Not reported | 3 (0.2) |
Have you ever taken part in PR? | |
Yes | 904 (53.6) |
No | 770 (45.7) |
Not sure | 10 (0.6) |
Not reported | 1 (0.1) |
If you have taken part in PR, how did you hear about it? You can choose more than one option. | |
Healthcare provider | 807 (89.3) |
On the internet | 74 (8.2) |
Published literature, such as newspapers or academic journals | 46 (5.1) |
Pamphlet/flyer | 30 (3.3) |
Advertisement (on TV, radio or in a magazine) | 5 (0.6) |
A friend or a family member | 69 (7.6) |
Someone who had taken part in PR | 109 (12.1) |
If you have taken part in PR, did you….? | |
Complete the whole programme | 777 (86.0) |
Stop early | 98 (10.8) |
Not reported | 29 (3.2) |
Reasons for stopping early (if applicable) (individual patient responses below): | |
Medical comorbidities/accident | |
Costs of the PR programme | |
Exacerbation of chronic lung disease | |
Death in the family | |
Still actively participating in the PR programme | |
If you have participated in PR, what is the lung condition for which you were referred? | |
COPD | 495 (54.8) |
Pulmonary fibrosis (or interstitial lung disease) | 201 (22.2) |
Pulmonary hypertension | 56 (6.2) |
Asthma | 41 (4.5) |
Cystic fibrosis | 12 (1.3) |
Bronchiectasis | 15 (1.7) |
Lung cancer | 14 (1.6) |
Other (including but not limited to) (individual patient responses below): | 70 (7.7) |
After pneumonia | |
α1-antitrypsin deficiency | |
Chronic bronchitis | |
After lung transplantation | |
Do you think that PR should be a part of healthcare services available to all patients that might benefit from it? | |
Yes | 1549 (91.9) |
No | 3 (0.2) |
Not sure | 111 (6.6) |
Not reported | 22 (1.3) |
Have you experienced any challenges to taking part in PR? (Multiple answers possible.) | |
No challenges | 670 (39.8) |
Never heard of PR | 377 (22.4) |
Not enough information to decide whether I want to participate | 162 (9.6) |
Not sure whether it would help me | 150 (8.9) |
Worried it might be painful | 37 (2.2) |
There is no PR service in my area | 134 (8.0) |
The doctor did not think it would help me | 44 (2.6) |
Did not qualify for the service in my area | 38 (2.3) |
Cannot get to the appointments, because the service is too far away | 52 (3.1) |
Not covered by my insurance | 93 (5.5) |
Lack of encouragement from the people running the program/staff | 45 (2.7) |
Family not supportive | 19 (1.1) |
Low self-confidence or anxiety | 72 (4.3) |
Other (including, but not limited to) (individual patient responses below): | 247 (14.7) |
Medical comorbidities | |
Disease instability/frequent exacerbations | |
Inconvenient PR times (still working/need for childcare) | |
PR programme (initially) limited to COPD patients only | |
Poor/no PR facilities available | |
Exercising with people on oxygen supplements was detrimental | |
No/pending approval from insurance | |
Lack of clarity in the referral process and reimbursement | |
(Co-)pay is too expensive | |
Transportation problems | |
Patient believes to be too ill to participate in PR | |
Patients believes to be active enough/PR not necessary | |
Physician unknown with the effects of PR | |
If you have participated in PR, what do you feel were the major benefits of the programme for you? You can choose more than one option. | |
Improved physical functioning in daily life | 658 (75.8) |
Improved mood or sense of emotional wellbeing | 439 (48.6) |
Improved knowledge about lung condition | 474 (52.4) |
Improved control of symptoms | 416 (46.0) |
Improved social functioning | 261 (28.9) |
Other (including but not limited to) (individual patient responses below): | 277 (30.6) |
A combination of the abovementioned improvements | |
Improved quality of life | |
Improved mobility | |
Empowering | |
Improved lifestyle | |
Improved self-confidence | |
Improved understanding of my problems | |
No change/improvement | |