Patient research priority areas
| Diagnosis |
| How to develop better, noninvasive methods for the early diagnosis of LAM |
| Progression |
| How to develop better information about the likely progression of LAM, perhaps through biomarkers |
| How does oestrogen affect LAM? |
| An analysis of complications associated with the condition such as gynaecological complications |
| Do lymphatics play a role in improved survival? |
| Drug treatment |
| How effective is sirolimus as a preventative drug? |
| An analysis of the ovarian toxicity of drugs |
| Why do some individuals develop resistance or do not respond to treatment? |
LAM: lymphangioleiomyomatosis.