Top 10 priorities from the lymphangioleiomyomatosis (LAM) survey
| 1) Improving methods of identifying patients with active disease | 81% |
| 2) Availability of drugs for LAM in all EU countries | 81% |
| 3) All patients can access a specialist LAM centre | 81% |
| 4) Lung transplants should be available to more patients and with shorter waiting times | 79% |
| 5) Improving noninvasive diagnosis | 78% |
| 6) Patients can access treatments such as low-dose sirolimus/everolimus | 77% |
| 7) Improving care for patients in nonspecialist hospitals/services | 77% |
| 8) Opportunity for patients to hear about and participate in clinical trials | 75% |
| 9) Improving diagnostic biomarkers so that diagnosis is faster and more definitive | 75% |
| 10) Development of a European-wide organ donor service | 73% |
Priorities are listed in descending order of importance. EU: European Union.