TABLE 4

Home support and training

PatientsCaregiversPatientsCaregivers
Have you made any changes to the ventilator to make it easier to use or more comfortable?Do you use the ventilator as instructed?
 Yes98%95%
 Sometimes1%0%
 No85%83% No1%5%
 Yes15%17%How good is the formal support that you
How did the health professional providereceive with your ventilator at home
information about the ventilator?(e.g. doctor, a home support team, local
 Spoken information36%32%healthcare service)?
 Spoken information36%32% Excellent28%37%
 Written information15%18% Good38%34%
 Demonstrated using the equipment29%28% Satisfactory18%18%
 Watched me using the equipment18%18% Unsatisfactory6%7%
 No/not much information3%4% No support10%4%
 In-patient training36%32%How could using your ventilator at home be
 Home-based training15%18%improved for you?
Would you be happy for your health Do not know/fine as it is63%69%
professional to monitor your ventilator remotely (telemonitoring) to make sure the settings are always correct and comfortable for you? Yes37%31%
 Yes47%62%
 Maybe30%22%
 No23%16%