Responders n | 687 | 100 |
Countries n | | |
UK | 16 | 5 |
Ireland | 5 | 0 |
Germany | 238 | 16 |
Netherlands | 256 | 30 |
Portugal | 5 | 1 |
Italy | 97 | 38 |
Spain | 65 | 10 |
Belgium | 1 | 0 |
France | 2 | 0 |
Czech Republic | 1 | 0 |
Greece | 1 | 0 |
Males | 58% | 44% |
Age | | |
<18 years | 1% | 3% |
18–35 years | 9% | 14% |
36–45 years | 8% | 14% |
46–65 years | 43% | 43% |
66–75 years | 27% | 13% |
>75 years | 12% | 13% |
Time of ventilator use | | |
0–6 months | 11% | 5% |
6–12 months | 8% | 16% |
1–2 years | 12% | 23% |
2–5 years | 24% | 22% |
5–10 years | 21% | 20% |
>10 years | 24% | 14% |
Interface | | |
Mouth mask/mouth piece | 34% | 30% |
Nasal mask | 39% | 36% |
Negative pressure device | 0% | 0% |
Tracheotomy | 11% | 10% |
Full face mask | 10% | 11% |
Mouthpiece | 4% | 8% |
Nasal pillows | 2% | 5% |
Home support | | |
Partner/spouse | 29% | 31% |
Relative | 14% | 34% |
Friend | 3% | 0% |
Support worker/personal assistant | 6% | 12% |
Nurse/home support team | 14% | 18% |
Self/independent | 19% | 2% |
Receiving support of two or more types | 15% | 3% |
Time of ventilator use | | |
Daytime | 44% | 65% |
Night time | 89% | 92% |
Daytime h | 6 | 7.2 |
Night time h | 8 | 9.8 |
Ventilation modalities | | |
Not sure | 20% | 21% |
Bilevel | 33% | 33% |
Volume-cycled ventilator | 7% | 4% |
Pressure support ventilator | 8% | 8% |
Combination or multimode | 13% | 19% |
Other | 19% | 15% |