Patient demographic and home mechanical ventilation characteristics
| Patients | Caregivers | |
| Responders n | 687 | 100 |
| Countries n | ||
| UK | 16 | 5 |
| Ireland | 5 | 0 |
| Germany | 238 | 16 |
| Netherlands | 256 | 30 |
| Portugal | 5 | 1 |
| Italy | 97 | 38 |
| Spain | 65 | 10 |
| Belgium | 1 | 0 |
| France | 2 | 0 |
| Czech Republic | 1 | 0 |
| Greece | 1 | 0 |
| Males | 58% | 44% |
| Age | ||
| <18 years | 1% | 3% |
| 18–35 years | 9% | 14% |
| 36–45 years | 8% | 14% |
| 46–65 years | 43% | 43% |
| 66–75 years | 27% | 13% |
| >75 years | 12% | 13% |
| Time of ventilator use | ||
| 0–6 months | 11% | 5% |
| 6–12 months | 8% | 16% |
| 1–2 years | 12% | 23% |
| 2–5 years | 24% | 22% |
| 5–10 years | 21% | 20% |
| >10 years | 24% | 14% |
| Interface | ||
| Mouth mask/mouth piece | 34% | 30% |
| Nasal mask | 39% | 36% |
| Negative pressure device | 0% | 0% |
| Tracheotomy | 11% | 10% |
| Full face mask | 10% | 11% |
| Mouthpiece | 4% | 8% |
| Nasal pillows | 2% | 5% |
| Home support | ||
| Partner/spouse | 29% | 31% |
| Relative | 14% | 34% |
| Friend | 3% | 0% |
| Support worker/personal assistant | 6% | 12% |
| Nurse/home support team | 14% | 18% |
| Self/independent | 19% | 2% |
| Receiving support of two or more types | 15% | 3% |
| Time of ventilator use | ||
| Daytime | 44% | 65% |
| Night time | 89% | 92% |
| Daytime h | 6 | 7.2 |
| Night time h | 8 | 9.8 |
| Ventilation modalities | ||
| Not sure | 20% | 21% |
| Bilevel | 33% | 33% |
| Volume-cycled ventilator | 7% | 4% |
| Pressure support ventilator | 8% | 8% |
| Combination or multimode | 13% | 19% |
| Other | 19% | 15% |