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The EMBARC European Bronchiectasis Registry: protocol for an international observational study

James D. Chalmers, Stefano Aliberti, Eva Polverino, Montserrat Vendrell, Megan Crichton, Michael Loebinger, Katerina Dimakou, Ian Clifton, Menno van der Eerden, Gernot Rohde, Marlene Murris-Espin, Sarah Masefield, Eleanor Gerada, Michal Shteinberg, Felix Ringshausen, Charles Haworth, Wim Boersma, Jessica Rademacher, Adam T. Hill, Timothy Aksamit, Anne O'Donnell, Lucy Morgan, Branislava Milenkovic, Leandro Tramma, Joao Neves, Rosario Menendez, Perluigi Paggiaro, Victor Botnaru, Sabina Skrgat, Robert Wilson, Pieter Goeminne, Anthony De Soyza, Tobias Welte, Antoni Torres, J. Stuart Elborn, Francesco Blasi on behalf of EMBARC.
ERJ Open Research 2016 2: 00081-2015; DOI: 10.1183/23120541.00081-2015
James D. Chalmers
1College of Medicine, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK
33These authors contributed equally
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  • For correspondence: jchalmers@dundee.ac.uk
Stefano Aliberti
2Dept of Health Science, University of Milan Bicocca, Clinica Pneumologica, AO San Gerardo, Monza, Italy
33These authors contributed equally
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Eva Polverino
3Fundaciò Clìnic, IDIBAPS, CIBERES, Hospital Clinic de Barcelona, Barcelona, Spain
33These authors contributed equally
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Montserrat Vendrell
4Bronchiectasis Group, Girona Biomedical Research Institute (IDIBGI), Dr Trueta University Hospital, Girona, Spain
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Megan Crichton
1College of Medicine, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK
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Michael Loebinger
5Host Defence Unit, Royal Brompton Hospital, London, UK
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Katerina Dimakou
65th Pulmonary Department, “Sotiria” Chest Hospital, Athens, Greece
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Ian Clifton
7Leeds Centre for Respiratory Medicine, St James's Hospital, Leeds, UK
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Menno van der Eerden
8Dept of Pulmonary Medicine, Erasmus MC Rotterdam, Rotterdam, The Netherlands
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Gernot Rohde
9Dept of Respiratory Medicine, Maastricht University Medical Center, Maastricht, The Netherlands
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Marlene Murris-Espin
10Pôle des Voies Respiratoires, Hôpital de Larrey, CHU de Toulouse, Toulouse, France
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Sarah Masefield
11European Lung Foundation, Sheffield, UK
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Eleanor Gerada
12Dept of Respiratory Medicine, Mater Dei Hospital, Msida, Malta
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Michal Shteinberg
13Pulmonary Institute, Carmel Medical Center, Haifa, Israel
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Felix Ringshausen
14Dept of Respiratory Medicine, Hannover Medical School, Member of the German Centre for Lung Research, Hannover, Germany
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Charles Haworth
15Cambridge Centre for Lung Infection, Papworth Hospital, Cambridge, UK
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Wim Boersma
16Dept of Pulmonary Diseases, Medical Centre Alkmaar, Alkmaar, The Netherlands
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Jessica Rademacher
14Dept of Respiratory Medicine, Hannover Medical School, Member of the German Centre for Lung Research, Hannover, Germany
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Adam T. Hill
17Royal Infirmary of Edinburgh, University of Edinburgh, Edinburgh, UK
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Timothy Aksamit
18Mayo Clinic College of Medicine, Rochester, MN, USA
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Anne O'Donnell
19Division of Pulmonary, Critical Care and Sleep Medicine, Georgetown University Medical Center, Washington, DC, USA
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Lucy Morgan
20Dept of Respiratory Medicine, Concord Hospital, Concord Clinical School, University of Sydney, Sydney, Australia
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Branislava Milenkovic
21Faculty of Medicine, University of Belgrade, Belgrade, Serbia
22Clinic for Pulmonary Diseases, Clinical Center of Serbia, Belgrade, Serbia
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Leandro Tramma
1College of Medicine, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK
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Joao Neves
23Medicina Interna, Centro Hospitalar do Porto, Porto, Portugal
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Rosario Menendez
24Pneumology Service, Universitary and Polytechnic Hospital La Fe, Valencia, Spain
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Perluigi Paggiaro
25Dept of Surgery, Medicine, Molecular Biology and Critical Care, University of Pisa, Pisa, Italy
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Victor Botnaru
26Division of Pneumology, Dept of Internal Medicine, State Medical University of Medicine and Pharmacy “Nicolae Testemitanu”, Chisinau, Republic of Moldova
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Sabina Skrgat
27University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia
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Robert Wilson
5Host Defence Unit, Royal Brompton Hospital, London, UK
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Pieter Goeminne
28Dept of Respiratory Medicine, AZ Nikolaas, Sint-Niklaas, Belgium
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Anthony De Soyza
29Institute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, UK
30Bronchiectasis Service, Freeman Hospital, Newcastle upon Tyne, UK
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Tobias Welte
14Dept of Respiratory Medicine, Hannover Medical School, Member of the German Centre for Lung Research, Hannover, Germany
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Antoni Torres
3Fundaciò Clìnic, IDIBAPS, CIBERES, Hospital Clinic de Barcelona, Barcelona, Spain
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J. Stuart Elborn
31School of Medicine, Dentistry and Biomedical Sciences, Queen's University of Belfast, Belfast, UK
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Francesco Blasi
32Respiratory Unit, IRCCS Fondazione Cà Granda Milano, Dept of Pathophysiology and Transplantation, University of Milan, Milan, Italy
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  • Article
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Figures

  • Additional Files
  • FIGURE 1
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    FIGURE 1

    Study flowchart. CT: computed tomography.

  • FIGURE 2
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    FIGURE 2

    The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) data collection platform. Image courtesy of EMBARC and the Health Informatics Centre (University of Dundee, Dundee, UK).

  • FIGURE 3
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    FIGURE 3

    Distribution of EMBARC (European Multicentre Bronchiectasis Audit and Research Collaboration) sites across Europe.

Additional Files

  • Figures
  • Disclosures

    Files in this Data Supplement:

    • S. Aliberti
    • T. Welte
    • F. Blasi
    • P. Goeminne
    • A.T. Hill
    • E. Polverino
    • F. Ringshausen
    • G. Rohde
    • M. van der Eerden
    • M. Vendrell
  • Supplementary material

    Please note: supplementary material is not edited by the Editorial Office, and is uploaded as it has been supplied by the author.

    Files in this Data Supplement:

    • EMBARC Case Report Form - Version 1.1, February 2015
    • Consent Form
    • Patient Information Sheet
    • EMBARC CRC Steering committee Job description
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The EMBARC European Bronchiectasis Registry: protocol for an international observational study
James D. Chalmers, Stefano Aliberti, Eva Polverino, Montserrat Vendrell, Megan Crichton, Michael Loebinger, Katerina Dimakou, Ian Clifton, Menno van der Eerden, Gernot Rohde, Marlene Murris-Espin, Sarah Masefield, Eleanor Gerada, Michal Shteinberg, Felix Ringshausen, Charles Haworth, Wim Boersma, Jessica Rademacher, Adam T. Hill, Timothy Aksamit, Anne O'Donnell, Lucy Morgan, Branislava Milenkovic, Leandro Tramma, Joao Neves, Rosario Menendez, Perluigi Paggiaro, Victor Botnaru, Sabina Skrgat, Robert Wilson, Pieter Goeminne, Anthony De Soyza, Tobias Welte, Antoni Torres, J. Stuart Elborn, Francesco Blasi
ERJ Open Research Jan 2016, 2 (1) 00081-2015; DOI: 10.1183/23120541.00081-2015

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The EMBARC European Bronchiectasis Registry: protocol for an international observational study
James D. Chalmers, Stefano Aliberti, Eva Polverino, Montserrat Vendrell, Megan Crichton, Michael Loebinger, Katerina Dimakou, Ian Clifton, Menno van der Eerden, Gernot Rohde, Marlene Murris-Espin, Sarah Masefield, Eleanor Gerada, Michal Shteinberg, Felix Ringshausen, Charles Haworth, Wim Boersma, Jessica Rademacher, Adam T. Hill, Timothy Aksamit, Anne O'Donnell, Lucy Morgan, Branislava Milenkovic, Leandro Tramma, Joao Neves, Rosario Menendez, Perluigi Paggiaro, Victor Botnaru, Sabina Skrgat, Robert Wilson, Pieter Goeminne, Anthony De Soyza, Tobias Welte, Antoni Torres, J. Stuart Elborn, Francesco Blasi
ERJ Open Research Jan 2016, 2 (1) 00081-2015; DOI: 10.1183/23120541.00081-2015
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