Abstract
Lymphangioleiomyomatosis (LAM) is a rare lung disease that almost exclusively affects women and develops in about one in 400 000 adult females. The European Lung Foundation worked closely with one of the patient organisations within its network, the European LAM Federation, to raise awareness of LAM at the 2014 European Respiratory Society International Congress in Munich, Germany. In addition, an invitation-only workshop with 45 individuals from 13 countries was held to discuss the priorities for women in Europe living with the disease. The need for ongoing collaboration to improve knowledge of this rare lung condition with healthcare professionals across Europe was highlighted.
Abstract
Patient organisations and @EuropeanLung have surveyed the priorities of people living with LAM http://ow.ly/10gTld
Footnotes
This article has supplementary material available from openres.ersjournals.com
Support statement: The work described in this article was supported by the European Lung Foundation. Funding information for this article has been deposited with FundRef.
Conflict of interest: S. Masefield, P. Powell and J. Boyd are employees of the European Lung Foundation. Further disclosures can be found alongside this article at openres.ersjournals.com
- Received December 18, 2015.
- Accepted March 19, 2016.
- Copyright ©ERS 2016
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