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Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective

Iris Bassi, Gill Hollis, Vincent Cottin, Sergio Harari, Elma Zwanenburg, Marcel Veltkamp, Alvaro Casanova, Monica Fletcher, Sarah Masefield, Pippa Powell, Jeanette Boyd
ERJ Open Research 2016 2: 00102-2015; DOI: 10.1183/23120541.00102-2015
Iris Bassi
1LAM Italia Onlus, Udine, Italy
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Gill Hollis
2LAM Action, Nottingham, UK
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Vincent Cottin
3Service de Pneumologie, Hopital L. Pradel, Claude Bernard University Lyon 1, Lyon, France
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Sergio Harari
4UO Pneumologia e Terapia Semi-Intensiva Respiratoria – Servizio di Fisiopatologia Respiratoria ed Emodinamica Polmonare, Osp. San Giuseppe – MultiMedica, Milan, Italy
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Elma Zwanenburg
5ILD Center of Excellence, St Antonius Hospital, Nieuwegein, The Netherlands
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Marcel Veltkamp
5ILD Center of Excellence, St Antonius Hospital, Nieuwegein, The Netherlands
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Alvaro Casanova
6Servicio de Neumología, Hospital Universitario del Henares, Coslada, Madrid, Spain
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Monica Fletcher
7Education for Health, Warwick, UK
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Sarah Masefield
8European Lung Foundation, Sheffield, UK
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Pippa Powell
8European Lung Foundation, Sheffield, UK
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Jeanette Boyd
8European Lung Foundation, Sheffield, UK
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  • For correspondence: jeanette.boyd@europeanlung.org
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Article Information

vol. 2 no. 2
DOI 
https://doi.org/10.1183/23120541.00102-2015

Published By 
European Respiratory Society
Online ISSN 
2312-0541
History 
  • Received December 18, 2015
  • Accepted March 19, 2016
  • Published online April 21, 2016.

Copyright & Usage 
Copyright ©ERS 2016 This article is open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.

Author Information

  1. Iris Bassi1,
  2. Gill Hollis2,
  3. Vincent Cottin3,
  4. Sergio Harari4,
  5. Elma Zwanenburg5,
  6. Marcel Veltkamp5,
  7. Alvaro Casanova6,
  8. Monica Fletcher7,
  9. Sarah Masefield8,
  10. Pippa Powell8 and
  11. Jeanette Boyd8⇑
  1. 1LAM Italia Onlus, Udine, Italy
  2. 2LAM Action, Nottingham, UK
  3. 3Service de Pneumologie, Hopital L. Pradel, Claude Bernard University Lyon 1, Lyon, France
  4. 4UO Pneumologia e Terapia Semi-Intensiva Respiratoria – Servizio di Fisiopatologia Respiratoria ed Emodinamica Polmonare, Osp. San Giuseppe – MultiMedica, Milan, Italy
  5. 5ILD Center of Excellence, St Antonius Hospital, Nieuwegein, The Netherlands
  6. 6Servicio de Neumología, Hospital Universitario del Henares, Coslada, Madrid, Spain
  7. 7Education for Health, Warwick, UK
  8. 8European Lung Foundation, Sheffield, UK
  1. Jeanette Boyd, European Lung Foundation, 442 Glossop Road, Sheffield, S10 2PX, UK. E-mail: jeanette.boyd{at}europeanlung.org
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Funding

  • European Lung Foundation

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Article usage: April 2016 to February 2023

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Vol 2 Issue 2 Table of Contents
ERJ Open Research: 2 (2)
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Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective
Iris Bassi, Gill Hollis, Vincent Cottin, Sergio Harari, Elma Zwanenburg, Marcel Veltkamp, Alvaro Casanova, Monica Fletcher, Sarah Masefield, Pippa Powell, Jeanette Boyd
ERJ Open Research Apr 2016, 2 (2) 00102-2015; DOI: 10.1183/23120541.00102-2015

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Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective
Iris Bassi, Gill Hollis, Vincent Cottin, Sergio Harari, Elma Zwanenburg, Marcel Veltkamp, Alvaro Casanova, Monica Fletcher, Sarah Masefield, Pippa Powell, Jeanette Boyd
ERJ Open Research Apr 2016, 2 (2) 00102-2015; DOI: 10.1183/23120541.00102-2015
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  • Article
    • Abstract
    • Abstract
    • Introduction
    • Background
    • Priority-setting consultation activities
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    • Priorities
    • Patient research priorities for LAM
    • Conclusions and recommendations
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