Figures
- FIGURE 1
Patients' and partners' experience of anxiety in the Netherlands (NL) and Germany (GE), based on the Generalised Anxiety Disorder-single item questionnaire [13]. Subject responses to the question “How often in the past 2 weeks did you have problems relaxing?”
- FIGURE 2
Experience of misunderstanding by patients and partners in the Netherlands (NL) and Germany (GE). Subject responses to the question “How often do you feel misunderstood because people do not know what pulmonary fibrosis is?”
- FIGURE 3
Preference of talking about matters concerning the end of life in patients from the Netherlands (NL) and Germany (GE). Responses to the statement “I would prefer to talk about matters concerning end of life at an early stage of my disease”.
- FIGURE 4
Need for information on disease and prospects in patients and partners from the Netherlands (NL) and Germany (GE). Responses to the statement “I would like to know everything about my disease and its prospects”.
- FIGURE 5
Feedback on interactive voting system in the Netherlands.
- FIGURE 6
Perception of patients and partners from the Netherlands (NL) and Germany (GE) of the usefulness of the information meeting.
- FIGURE 7
General feeling of patients and partners from the Netherlands (NL) and Germany (GE) after the information meeting.
Tables
- TABLE 1
Demographics of patients and partners
The Netherlands (2013 + 2014 + 2015) Germany (2014) Patients 134 (48) 27 (53) Partners 144 (52) 24 (47) Diagnoses# IPF 88 (70) 20 (80) CTD-PF 14 (11) 2 (8) Exposure related 14 (11) 3 (12) Unknown 10 (8) 0 (0) Data are presented as n (%). IPF: idiopathic pulmonary fibrosis; CTD-PF: connective tissue disease-associated pulmonary fibrosis. #: based on survey question.
Supplementary Material
Please note: supplementary material is not edited by the Editorial Office, and is uploaded as it has been supplied by the author.
Table S1 00065-2016_table_S1
Table S2 00065-2016_table_S2
Supplementary Material
M. Kreuter 00065-2016_Kreuter
B. Van den Blink 00065-2016_van_den_Blink
M.S. Wijsenbeek 00065-2016_Wijsenbeek
