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Feasibility, utility and symptom impact of modified mindfulness training in sarcoidosis

Lesley Ann Saketkoo, Aryn Karpinski, Jessica Young, Ryan Adell, McCall Walker, Tamarin Hennebury, Melissa Wickremasinghe, Anne-Marie Russell
ERJ Open Research 2018 4: 00085-2017; DOI: 10.1183/23120541.00085-2017
Lesley Ann Saketkoo
1New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, University Medical Center Comprehensive Pulmonary Hypertension Center and Tulane University School of Medicine, New Orleans, LA, USA
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Aryn Karpinski
2Evaluation and Measurement, School of Foundations, Leadership and Administration, Kent State University, Kent, OH, USA
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Jessica Young
3Louisiana State University, School of Medicine, Baton Rouge, LA, USA
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Ryan Adell
3Louisiana State University, School of Medicine, Baton Rouge, LA, USA
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McCall Walker
4University of Virginia, School of Medicine, Charlottesville, VA, USA
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Tamarin Hennebury
5Touro Therapeutic Wellness Center, New Orleans, LA, USA
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Melissa Wickremasinghe
6Imperial College Healthcare NHS Trust, London, UK
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Anne-Marie Russell
7National Heart and Lung Institute Imperial College, London, UK
8Royal Brompton Hospital, London, UK
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Tables

  • TABLE 1

    Concept items with response scales and statistical results

    Response scalePre-mindfulness
    mean±sd
    Post-mindfulness
    mean±sd
    p-value
    Physical items0–10 (None at all to worst possible)
     Shortness of breath?2.77±2.461.83±2.060.002
     Coughing?1.56±2.380.78±1.57ns
     Body pain?4.08±2.873.27±2.73ns
     Headache?2.44±2.861.43±2.190.009
     Fatigue?5.62±2.733.57±2.79<0.001
     Nausea?1.42±2.520.48±1.040.041
    Psychological items0–10 (None at all to worst possible)
     Feelings of stress?4.08±2.992.43±2.660.012
     Anxiety?3.96±2.892.17±2.310.002
     Feel worried?4.27±2.922.30±2.180.001
     Depressed?3.77±3.022.13±2.360.003
    Additional items
     Ability to focus?0–10 (Not able at all to excellent focus)3.69±2.343.48±2.48ns
     Overall sense of well-being?0–10 (Extremely poor to excellent well-being)4.58±2.163.30±1.92<0.01
     Feel sense of motivation?0–10 (Not at all to excellent motivation)3.80±2.362.82±2.15<0.01
    Workshop
     How beneficial?0–10 (Not at all to extremely beneficial)7.54±1.88
     How likely to recommend to others with0–10 (Not at all likely to extremely7.81±2.19
      sarcoidosis?likely)
     How easy to incorporate into daily life?0–10 (Not at all easy to extremely easy)7.84±1.72
     How likely to seek similar experiences?0–10 (Not at all likely to extremely likely)7.24±1.99
     How likely to introduce into daily routine?0–10 (Not at all likely to extremely likely)7.76±1.92

    ns: nonsignificant.

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    Feasibility, utility and symptom impact of modified mindfulness training in sarcoidosis
    Lesley Ann Saketkoo, Aryn Karpinski, Jessica Young, Ryan Adell, McCall Walker, Tamarin Hennebury, Melissa Wickremasinghe, Anne-Marie Russell
    ERJ Open Research Apr 2018, 4 (2) 00085-2017; DOI: 10.1183/23120541.00085-2017

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    Feasibility, utility and symptom impact of modified mindfulness training in sarcoidosis
    Lesley Ann Saketkoo, Aryn Karpinski, Jessica Young, Ryan Adell, McCall Walker, Tamarin Hennebury, Melissa Wickremasinghe, Anne-Marie Russell
    ERJ Open Research Apr 2018, 4 (2) 00085-2017; DOI: 10.1183/23120541.00085-2017
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