Diagnosis | Early and accurate diagnosis | Early and accurate diagnosis with multidisciplinary team input | Timely and accurate diagnosis and care involving an appropriately skilled, specialist multidisciplinary team | Timely and accurate diagnosis and care, involving a skilled specialist and a multidisciplinary care team |
Care | Equal access to care | Access to appropriate medicines and oxygen therapy | Access to seamless, well-integrated health and social care services, including ambulatory and domiciliary oxygen services personalised to the needs of IPF patients | Equal levels of care across Canada based on the best standard of care currently available |
Information | Comprehensive and high-quality information about the condition | Clear and concise information about IPF in plain language | High-quality information about the condition, including full details of all treatment, clinical trials, transplant, support and service provision options available to them | High-quality and accurate information about IPF, including full details of all treatments, clinical trials, support, service provisions and transplant options available to them |
Holistic | A holistic approach to standardise IPF management | | | Seamless, well-integrated health and social care services, including timely access to ambulatory and personalised home oxygen services and appropriate IPF medications |
Support | | Access to social, practical and emotional support | Access to dedicated peer support networks, both for patients and their carers, in person or digitally | Dedicated in-person or remote peer support networks for patients and their caregivers |
Palliative care | Better access to palliative care and end-of-life care | | Specialist palliative care and end-of-life care; supported by the Gold Standards Framework where appropriate | Improved, more accessible, compassionate palliative and end-of-life care when appropriate |
Pulmonary rehabilitation and transplant | | Early referral to the National Lung Transplant Unit for lung transplant assessment, with a minimal emphasis on age Early referral to pulmonary rehabilitation and exercise programmes | | Swift access to specialist care and IPF-tailored pulmonary rehabilitation programmes, appropriate prioritisation on transplant waiting lists, and prompt social care assessments and response for patients with exacerbations and rapid disease progression |