Extract
An international priority is to engage patients at-risk of or living with chronic obstructive pulmonary disease (COPD) in online research and self-management programmes to establish evidence for their efficacy and obtain patient perspectives about healthcare [1]. Participatory social media and electronic research registries pose opportunities for stakeholders to readily access this patient population [2–4]. Despite increased access, patients with COPD continue to report limited willingness to participate in online disease-specific programmes and studies [5].
Abstract
Social media and research registries effectively reach diverse subgroups of patients with obstructive lung conditions. Patient co-created mail and e-mail pre-notifications that precede a formal e-mail invitation can enhance enrolment in online research. http://ow.ly/gQQt30o6Bcw
Footnotes
Conflict of interest: S.R. Paige has nothing to disclose.
Conflict of interest: J.L. Krieger has nothing to disclose.
Support statement: Research reported in this publication was supported by the National Heart, Lung, and Blood Institute of the National Institutes of Health (NIH) under award numbers F31HL132463 and F32HL143938; and the NIH/NCATS Clinical and Translational Science Award to the University of Florida (grant number ULITR000064). Funding information for this article has been deposited with the Crossref Funder Registry.
- Received September 19, 2018.
- Accepted February 24, 2019.
- Copyright ©ERS 2019
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