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Health-related quality of life and psychological wellbeing are poor in children with bronchiectasis and their parents

Narelle S. Cox, Christine J. Wilson, Katharine A. Bennett, Kylie Johnston, Angela Potter, Anne B. Chang, Annemarie L. Lee
ERJ Open Research 2019 5: 00063-2019; DOI: 10.1183/23120541.00063-2019
Narelle S. Cox
1Discipline of Physiotherapy, La Trobe University, Melbourne, Australia
2Institute for Breathing and Sleep, Melbourne, Australia
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Christine J. Wilson
3Physiotherapy, Queensland Children's Hospital, Brisbane, Australia
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Katharine A. Bennett
4Physiotherapy, Royal Children's Hospital, Melbourne, Australia
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Kylie Johnston
5School of Health Sciences, University of SA, Adelaide, Australia
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Angela Potter
6Physiotherapy, Women's and Children's Hospital, Adelaide, Australia
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Anne B. Chang
7Dept of Respiratory and Sleep Medicine, Queensland Children's Hospital, Brisbane, Australia
8Child Health Division, Menzies School of Health Research, Charles Darwin University, Darwin, Australia
9Centre for Children's Health Research, Queensland University of Technology, Brisbane, Australia
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Annemarie L. Lee
1Discipline of Physiotherapy, La Trobe University, Melbourne, Australia
2Institute for Breathing and Sleep, Melbourne, Australia
10Centre for Allied Health Research and Education, Cabrini Health, Melbourne, Australia
11Dept of Physiotherapy, Monash University, Melbourne, Australia
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  • For correspondence: Annemarie.Lee@monash.edu
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Extract

Bronchiectasis is characterised by chronic wet cough, a cycle of inflammation, impaired mucociliary clearance, bacterial colonisation and infection [1]. People with bronchiectasis experience substantial disease burden, including recurrent hospitalisations and impaired quality of life (QoL) [2]. The prevalence and burden of bronchiectasis is increasingly appreciated worldwide [3].

Abstract

Children with bronchiectasis in a stable state have poor HRQoL and their parents report higher levels of anxiety and depression. Parental perception of HRQoL is associated with poorer parental psychological wellbeing. http://bit.ly/2lcf3uB

Footnotes

  • Support statement: N.S. Cox is supported by a National Health and Medical Research Council (NHMRC) early career fellowship (GNT1119970). A.B. Chang is supported by a NHMRC practitioner fellowship (GNT1154302) and holds multiple NHMRC grants awarded related to diseases associated with paediatric cough and bronchiectasis.

  • Conflict of interest: N.S. Cox has nothing to disclose.

  • Conflict of interest: C.J. Wilson has nothing to disclose.

  • Conflict of interest: K.A. Bennett has nothing to disclose.

  • Conflict of interest: K. Johnston has nothing to disclose.

  • Conflict of interest: A. Potter has nothing to disclose.

  • Conflict of interest: A.B. Chang has nothing to disclose.

  • Conflict of interest: A.L. Lee has nothing to disclose.

  • Received March 7, 2019.
  • Accepted July 9, 2019.
  • Copyright ©ERS 2019
http://creativecommons.org/licenses/by-nc/4.0/

This article is open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.

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Health-related quality of life and psychological wellbeing are poor in children with bronchiectasis and their parents
Narelle S. Cox, Christine J. Wilson, Katharine A. Bennett, Kylie Johnston, Angela Potter, Anne B. Chang, Annemarie L. Lee
ERJ Open Research Jul 2019, 5 (3) 00063-2019; DOI: 10.1183/23120541.00063-2019

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Health-related quality of life and psychological wellbeing are poor in children with bronchiectasis and their parents
Narelle S. Cox, Christine J. Wilson, Katharine A. Bennett, Kylie Johnston, Angela Potter, Anne B. Chang, Annemarie L. Lee
ERJ Open Research Jul 2019, 5 (3) 00063-2019; DOI: 10.1183/23120541.00063-2019
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