Figures
- FIGURE 1
Prevalence of home mechanical ventilation in Finland on 1 January 2019. Mean prevalence of home mechanical ventilation in five university hospital areas in Finland. The mean prevalence in Finland was 2.0 in 100 000 inhabitants. The mean population was 4.6 million adults (2018). OUH: Oulu University Hospital; KUH: Kuopio University Hospital; TAUH: Tampere University Hospital; TUH: Turku University Hospital; HUH: Helsinki University Hospital.
- FIGURE 2
New and deceased home invasive mechanical ventilation patients in Finland in 2015–2019.
- FIGURE 3
Diagnostic groups of home invasive mechanical ventilation patients on 1 January 2019. Sector diagram representing proportions of the six diagnostic groups using long-term home invasive mechanical ventilation in Finland. The motor neurone disease group includes motor neurone disease, amyotrophic lateral sclerosis and spinal muscular atrophy patients. The spinal cord injury group includes both traumatic and nontraumatic injuries. The muscular diseases group includes congenital muscular dystrophies, Becker and limb-girdle muscular dystrophies, nemaline myopathy, myotonic dystrophy and cerebral palsy. The miscellaneous group includes congenital deformities, basal ganglia disease, encephalitis, Larsen syndrome, other polymyositis, central sleep apnoea, Guillain–Barré syndrome, other polyneuropathy and other neuropathy (brain tumours and injuries, intracerebral infarctions and haemorrhages, arteriovenous malformation).
Tables
- TABLE 1
Number and proportion of all home mechanical ventilated patients in Finland in 2015–2019
Patients New patients# Deceased patients¶ Fully HIMV-dependent patients+ Male Electively initiated HIMV All patients§ 141 (100%) 34 46 110 (82%) 91 (67%) 47 (34%) Motor neurone disease 41 (29%) 11 16 36 (88%) 20 (49%) 18 (44%) Spinal cord injury 28 (20%) 8 8 22 (79%) 24 (86%) 2 (7%) Miscellaneous 25 (18%) 5 8 16 (64%) 18 (72%) 4 (16%) Muscular diseases 21 (15%) 7 7 18 (86%) 12 (57%) 9 (43%) Duchenne muscular dystrophy 20 (14%) 4 5 20 (100%) 20 (100%) 12 (60%) Post-polio syndrome 5 (4%) 0 2 4 (80%) 2 (40%) 2 (40%) Data are presented as n (%) or n. HIMV: home invasive mechanical ventilation. #: Patients whose treatment was initiated on 2 January 2015 to 1 January 2019; ¶: patients who died between 1 January 1 2015 and 1 January 2019; +: patients who use HIMV 24 h a day; §: “All patients” includes patients who were already on HIMV treatment on 1 January 2015 (n=107) and new patients whose treatment was initiated between 2 January 2015 and 1 January 2019 (n=34).
- TABLE 2
Specific data of diagnostic groups using HIMV in Finland in 2015–2019
All patients (n=141) Motor neurone disease (n=41) Spinal cord injury (n=28) Miscellaneous (n=25) Muscular diseases (n=21) Duchenne muscular dystrophy (n=20) Post-polio syndrome (n=5) Age at diagnosis 35.8±24.8 54.5±10.9 41.1±21.1 40.4±25.6 10.1±14.7 9.8±8.4 3.2±3.7 Age at HIMV initiation years 42.9±21.2 56.5±9.3 42.7±21.3 44.6±25.5 29.7±21.2 28.4±9.5 25.2±30.2 Time from diagnosis to HIMV initiation years 7.6±12.3 2.0±2.4 2.4±7.9 4.7±8.0 18.8±15.8 20.5±10.0 22.0±32.2 Time from HIMV initiation to 1 January 2019 years 12.3±11.4 7.7±5.1 9.4±7.9 12.0±9.7 19.9±13.9 11.0±7.7 47.3±24.2 Lifetime of deceased patient years 61.7±14.7 65.4±9.0 58.6±14.7 68.4±16.1 59.5±15.6 33.1±8.5 68.0±3.3 HIMV duration of deceased patient years 11.2±12.4 9.0±4.1 7.4±5.4 6.4±1.8 22.5±17.1 4.6±4.4 34.4±43.3 Prevalence of HIMV per 100 000 people 2.0 0.5 0.4 0.4 0.3 0.3 0.0 HIMV: home invasive mechanical ventilation. All deceased patients were diagnosed before 1 January 2015.
