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Research priorities in α1-antitrypsin deficiency: results of a patients' and healthcare providers' international survey from the EARCO Clinical Research Collaboration

Miriam Barrecheguren, Karen O'Hara, Marion Wilkens, Jeanette Boyd, Ewa Kolda, Beatriz Lara, Joanna Chorostowska-Wynimko, Ilaria Ferrarotti, Jan Chlumský, Christian Clarenbach, Timm Greulich, Marc Miravitlles, Maria Sucena on behalf of EARCO
ERJ Open Research 2020 6: 00523-2020; DOI: 10.1183/23120541.00523-2020
Miriam Barrecheguren
1Pneumology Dept, Hospital Universitari Vall d'Hebron, Vall d'Hebron Institut de Recerca, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain
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Karen O'Hara
2Alpha-1 UK Support Group, Droitwich, UK
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Marion Wilkens
3Alpha1 Deutschland e.V, Gernsheim, Germany
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Jeanette Boyd
4European Lung Foundation, Sheffield, UK
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Ewa Kolda
5Dept of Respiratory Medicine, Allergology and Pulmonary Oncology, Poznań University of Medical Sciences, Poznan, Poland
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Beatriz Lara
6Dept of Respiratory Medicine, University Hospitals of Coventry and Warwickshire, Coventry, UK
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  • ORCID record for Beatriz Lara
Joanna Chorostowska-Wynimko
7Dept of Genetics and Clinical Immunology, National Institute of Tuberculosis and Lung Diseases, Warsaw, Poland
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Ilaria Ferrarotti
8Dept of Internal Medicine and Therapeutics, Pneumology Unit, IRCCS San Matteo Hospital Foundation, University of Pavia, Pavia, Italy
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Jan Chlumský
9Dept of Pneumology, Thomayer Hospital, First Faculty of Medicine, Charles University, Prague, Czech Republic
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Christian Clarenbach
10Division of Pulmonology, University Hospital Zurich, Zurich, Switzerland
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  • ORCID record for Christian Clarenbach
Timm Greulich
11Dept of Medicine, Pulmonary and Critical Care Medicine, University Medical Centre Giessen and Marburg, Philipps-University, Member of the German Centre for Lung Research (DZL), Marburg, Germany
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Marc Miravitlles
1Pneumology Dept, Hospital Universitari Vall d'Hebron, Vall d'Hebron Institut de Recerca, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain
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  • For correspondence: marcm@separ.es
Maria Sucena
12Pulmonology Dept, Centro Hospitalar do Porto, Porto, Portugal
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Article Information

vol. 6 no. 4
DOI 
https://doi.org/10.1183/23120541.00523-2020

Published By 
European Respiratory Society
Online ISSN 
2312-0541
History 
  • Received July 25, 2020
  • Accepted October 9, 2020
  • Published online December 21, 2020.

Article Versions

  • previous version (November 6, 2020 - 08:46).
  • You are viewing the most recent version of this article.
Copyright & Usage 
Copyright ©ERS 2020 This article is open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.

Author Information

  1. Miriam Barrecheguren1,
  2. Karen O'Hara2,
  3. Marion Wilkens3,
  4. Jeanette Boyd4,
  5. Ewa Kolda5,
  6. Beatriz Lara6,
  7. Joanna Chorostowska-Wynimko7,
  8. Ilaria Ferrarotti8,
  9. Jan Chlumský9,
  10. Christian Clarenbach10,
  11. Timm Greulich11,
  12. Marc Miravitlles1⇑ and
  13. Maria Sucena12
  14. on behalf of EARCO
  1. Marc Miravitlles, Pneumology Dept, Hospital Universitari Vall d'Hebron, Vall d'Hebron Barcelona Hospital Campus, Passeig Vall d'Hebron 119–129, 08035 Barcelona, Spain. E-mail: marcm{at}separ.es
      1. 1Pneumology Dept, Hospital Universitari Vall d'Hebron, Vall d'Hebron Institut de Recerca, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain
      2. 2Alpha-1 UK Support Group, Droitwich, UK
      3. 3Alpha1 Deutschland e.V, Gernsheim, Germany
      4. 4European Lung Foundation, Sheffield, UK
      5. 5Dept of Respiratory Medicine, Allergology and Pulmonary Oncology, Poznań University of Medical Sciences, Poznan, Poland
      6. 6Dept of Respiratory Medicine, University Hospitals of Coventry and Warwickshire, Coventry, UK
      7. 7Dept of Genetics and Clinical Immunology, National Institute of Tuberculosis and Lung Diseases, Warsaw, Poland
      8. 8Dept of Internal Medicine and Therapeutics, Pneumology Unit, IRCCS San Matteo Hospital Foundation, University of Pavia, Pavia, Italy
      9. 9Dept of Pneumology, Thomayer Hospital, First Faculty of Medicine, Charles University, Prague, Czech Republic
      10. 10Division of Pulmonology, University Hospital Zurich, Zurich, Switzerland
      11. 11Dept of Medicine, Pulmonary and Critical Care Medicine, University Medical Centre Giessen and Marburg, Philipps-University, Member of the German Centre for Lung Research (DZL), Marburg, Germany
      12. 12Pulmonology Dept, Centro Hospitalar do Porto, Porto, Portugal
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      Vol 6 Issue 4 Table of Contents
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      Research priorities in α1-antitrypsin deficiency: results of a patients' and healthcare providers' international survey from the EARCO Clinical Research Collaboration
      Miriam Barrecheguren, Karen O'Hara, Marion Wilkens, Jeanette Boyd, Ewa Kolda, Beatriz Lara, Joanna Chorostowska-Wynimko, Ilaria Ferrarotti, Jan Chlumský, Christian Clarenbach, Timm Greulich, Marc Miravitlles, Maria Sucena
      ERJ Open Research Oct 2020, 6 (4) 00523-2020; DOI: 10.1183/23120541.00523-2020

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      Research priorities in α1-antitrypsin deficiency: results of a patients' and healthcare providers' international survey from the EARCO Clinical Research Collaboration
      Miriam Barrecheguren, Karen O'Hara, Marion Wilkens, Jeanette Boyd, Ewa Kolda, Beatriz Lara, Joanna Chorostowska-Wynimko, Ilaria Ferrarotti, Jan Chlumský, Christian Clarenbach, Timm Greulich, Marc Miravitlles, Maria Sucena
      ERJ Open Research Oct 2020, 6 (4) 00523-2020; DOI: 10.1183/23120541.00523-2020
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