Improving knowledge of AATD, in particular among general practitioners | 99 | 99 | 99 |
Access to AATD specialised centres | 97 | 99 | 96 |
Access to reliable, easy to understand information about living with AATD | 97 | 99 | 96 |
Being able to recognise an exacerbation | 97 | 98 | 97 |
Targeted screening programmes: COPD and asthma patients | 96 | 94 | 99 |
Having an action plan for exacerbations and easy access to healthcare during episodes | 96 | 99 | 95 |
A personalised integrated care plan including therapeutic physical activity | 95 | 91 | 98 |
Education for physicians on diagnostic techniques, algorithm, interpretation of results | 95 | 95 | 97 |
Regular communication between healthcare professional team and AATD patient | 94 | 94 | 97 |
Having access to pulmonary rehabilitation and being taught the techniques and how to use the equipment at home | 93 | 95 | 93 |
Diagnosis in liver disease patients (children and adults) | 93 | 92 | 95 |
Educational programmes regarding regional/national resources to diagnose and refer AATD patients | 93 | 96 | 95 |
Smoking cessation | 93 | 88 | 96 |
Develop better ways of teaching people to use their medicines e.g. inhalers, oxygen | 92 | 90 | 94 |
Diagnosis of non-respiratory diseases associated with AATD | 91 | 90 | 95 |
Develop other aspects of integral care (e.g. physical activity, caregiver support, maintaining work or schooling, nutrition, psychological care, sex life, daily life) | 91 | 85 | 94 |
Role of pulmonary rehabilitation | 91 | 89 | 95 |
Availability of organ (lung and/or liver) donation | 90 | 91 | 92 |
Role of nutrition | 90 | 91 | 93 |
Use of vaccines to prevent exacerbations | 90 | 93 | 90 |
Relationship between AATD and other diseases | 90 | 94 | 89 |
More evidence on effectiveness of augmentation therapy | 90 | 94 | 92 |
Different evolution of the disease among patients | 89 | 91 | 91 |
Synthetic AAT production to cover the demand | 89 | 91 | 88 |
Evidence on the effect of augmentation therapy on reducing exacerbations | 89 | 92 | 90 |
Development of an international AATD registry | 89 | 91 | 89 |
Alternatives to IV augmentation therapy (e.g. inhaled augmentation therapy) | 89 | 89 | 94 |