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Patient-reported quality of life in fibrotic interstitial lung disease: novel assessments of self-management ability and affect

Teng Moua, Aahd Kubbara, Paul Novotny, Jennifer L. Ridgeway, Andrew H. Limper, Jay H. Ryu, Matthew M. Clark, Roberto Benzo
ERJ Open Research 2021 7: 00011-2021; DOI: 10.1183/23120541.00011-2021
Teng Moua
1Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, USA
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  • For correspondence: moua.teng@mayo.edu
Aahd Kubbara
1Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, USA
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Paul Novotny
2Dept of Health Sciences Research, Mayo Clinic, Rochester, MN, USA
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Jennifer L. Ridgeway
3Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Mayo Clinic, Rochester, MN, USA
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Andrew H. Limper
1Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, USA
3Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Mayo Clinic, Rochester, MN, USA
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Jay H. Ryu
1Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, USA
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Matthew M. Clark
4Dept of Psychiatry and Psychology, Mayo Clinic, Rochester, MN, USA
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Roberto Benzo
1Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, USA
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Tables

  • TABLE 1

    Baseline characteristics, patient-reported quality of life outcome comparisons, and LASSO predictor models of Chronic Respiratory Questionnaire (CRQ) domains

    ParameterIPFNon-IPFp-value#
    Subjects n53114
    Age years71 (68–76)68 (61–75)0.006
    Female sex12 (23%)56 (49%)0.001
    FVC % pred71 (61–82)68 (55–85)0.642
    DLCO % pred46 (38–59)50 (39–63)0.214
    Ever-smoker status29 (55%)60 (53%)0.674
    UIP radiological pattern on CT47 (89%)25 (22%)<0.0001
    Reported symptom duration months24 (10–53)18 (8–42)0.215
    6MWT distance m363 (297–385); (n=22)347 (268–469); (n=34)0.687
    mMRC dyspnoea scale (0–4)2 (1–3)3 (1–3)0.147
    PANAS Positive Score34 (28–37)33 (27–38)0.776
    PANAS Negative Score12 (11–17)15 (12–20)0.043
    PANAS ratio >2.923 (44%)30 (28%)0.042
    SMAS-30 Taking Initiatives subscore (0–100)70 (60–84)68 (56–84)0.508
    SMAS-30 Investment behaviour subscore (0–100)68 (56–78)64 (52–80)0.797
    SMAS-30 Self-efficacy subscore (0–100)92 (84–100)92 (82–100)0.539
    SMAS-30 Total (0–100)70 (59–80)68 (59–80)0.802
    CRQ Dyspnoea5.8 (4.1–6.6)5.2 (3.4–6.2)0.165
    CRQ Fatigue4.5 (3.5–5.3)4.0 (3.0–5.0)0.068
    CRQ Emotional subscale5.3 (4.5–6.0)5.0 (4.1–5.9)0.104
    CRQ Mastery5.5 (4.5–6.3)5.3 (4.0–6.3)0.179
    CRQ Emotional Function (1–7)5 (4.5–6)5 (4.1–5.9)0.104
    CRQ Physical score5.3 (3.9–5.7)4.7 (3.2–5.5)0.057

    Data are presented as median (interquartile range) or n (%), unless otherwise stated. IPF: idiopathic pulmonary fibrosis; FVC: forced vital capacity; DLCO: diffusion capacity for carbon monoxide; UIP: usual interstitial pneumonia; CT: computed tomography; 6MWT: 6-min walk test; mMRC: modified Medical Research Council; PANAS: positive and negative affect survey; SMAS-30: self-management assessment survey 30. #: comparison between IPF and non-IPF subjects.

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    Patient-reported quality of life in fibrotic interstitial lung disease: novel assessments of self-management ability and affect
    Teng Moua, Aahd Kubbara, Paul Novotny, Jennifer L. Ridgeway, Andrew H. Limper, Jay H. Ryu, Matthew M. Clark, Roberto Benzo
    ERJ Open Research Jan 2021, 7 (1) 00011-2021; DOI: 10.1183/23120541.00011-2021

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    Patient-reported quality of life in fibrotic interstitial lung disease: novel assessments of self-management ability and affect
    Teng Moua, Aahd Kubbara, Paul Novotny, Jennifer L. Ridgeway, Andrew H. Limper, Jay H. Ryu, Matthew M. Clark, Roberto Benzo
    ERJ Open Research Jan 2021, 7 (1) 00011-2021; DOI: 10.1183/23120541.00011-2021
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