Article Information
vol. 7 no. 3
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History
- Received May 5, 2021
- Accepted May 16, 2021
- Published online August 2, 2021.
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- previous version (June 11, 2021 - 02:34).
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Copyright ©The authors 2021 This version is distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0. For commercial reproduction rights and permissions contact permissions@ersnet.org
Author Information
- June K. Marthin1⇑,
- Jane S. Lucas2,
- Mieke Boon3,
- Carmen Casaulta4,
- Suzanne Crowley5,
- Damien M.S. Destouches6,25,
- Ernst Eber7,
- Amparo Escribano8,
- Eric Haarman9,
- Claire Hogg10,
- Bernard Maitre11,
- Gemma Marsh10,
- Vendula Martinu12,
- Antonio Moreno-Galdó13,14,
- Huda Mussaffi15,
- Heymut Omran16,
- Petr Pohunek12,
- Bernhard Rindlisbacher17,25,
- Phil Robinson18,19,20,
- Deborah Snijders21,
- Woolf T. Walker2,
- Panayiotis Yiallouros22,
- Helle Krogh Johansen23,24 and
- Kim G. Nielsen1,24
- 1Danish PCD Centre Copenhagen, Paediatric Pulmonary Service, Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark
- 2Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Centre, Clinical and Experimental Science, University of Southampton, Southampton, UK
- 3Dept of Paediatrics, University Hospital Gasthuisberg, Leuven, Belgium
- 4Division of Paediatric Respiratory Medicine, University Children's Hospital, Bern, Switzerland
- 5Paediatric Dept of Allergy and Lung Diseases, Oslo University Hospital, Oslo, Norway
- 6Association des Patients Ayant une Dyskinésie Ciliaire Primitive, Limeil-Brevannes, France
- 7Division of Paediatric Pulmonology and Allergology, Dept of Paediatrics and Adolescent Medicine, Medical University of Graz, Graz, Austria
- 8Pediatric Pulmonology Unit, Hospital Clínico Universitario de Valencia, University of Valencia, Valencia, Spain
- 9Dept of Pediatric Pulmonology, VU University Medical Center, Amsterdam, The Netherlands
- 10Depts of Paediatrics and Paediatric Respiratory Medicine, Imperial College and Royal Brompton Hospital, London, UK
- 11Pulmonary Service, Centre constitutif Respirare, Centre Hospitalier intercommunal de Créteil, Univ Paris Est Creteil, INSERM, IMRB, Creteil, France
- 12Paediatric Pulmonology, Paediatric Dept, 2nd Faculty of Medicine, Charles University and University Hospital Motol, Prague, Czech Republic
- 13Dept of Pediatrics, Vall d'Hebron Hospital Universitari, Vall d'Hebron Barcelona Hospital Campus, Universitat Autònoma de Barcelona, Barcelona, Spain
- 14CIBER of Rare Diseases (CIBERER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain
- 15Schneider Children's Medical Center of Israel, Petach-Tikva, Sackler School of Medicine, Tel-Aviv, Israel
- 16Dept of General Paediatrics and Adolescent Medicine, University Hospital Muenster, Muenster, Germany
- 17Kartagener Syndrom und Primäre Ciliäre Dyskinesie, Steffisburg, Switzerland
- 18Dept of Respiratory and Sleep Medicine, Royal Children's Hospital, Parkville, Australia
- 19Dept of Paediatrics, University of Melbourne, Parkville, Australia
- 20Murdoch Children's Research Institute, Parkville, Australia
- 21Primary Ciliary Dyskinesia Centre, Dept of Woman and Child Health (SDB), University of Padova, Padua, Italy
- 22Medical School, University of Cyprus, Nicosia, Cyprus
- 23Dept of Clinical Microbiology, University Hospital Rigshospitalet, Copenhagen, Denmark
- 24Dept of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark
- 25Patient representative
- Corresponding author: June K. Marthin (june.kehlet.marthin.01{at}regionh.dk)
Funding
Ministerstvo Zdravotnictví Ceské Republiky
grant nr. NV-19-07-00210.European Reference Network for Rare Respiratory Diseases (ERN-LUNG)
Project ID No 739546.Børnelungefonden
European Cooperation in Science and Technology
COST Action BM 1407Danmarks Lungeforening
European Respiratory Society
CRC