Skip to main content

Main menu

  • Home
  • Current issue
  • Early View
  • Archive
  • Authors/reviewers
    • Instructions for authors
    • Submit a manuscript
    • COVID-19 submission information
    • Institutional open access agreements
    • Peer reviewer login
  • Alerts
  • Subscriptions
  • ERS Publications
    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS Books
    • ERS publications home

User menu

  • Log in
  • Subscribe
  • Contact Us
  • My Cart

Search

  • Advanced search
  • ERS Publications
    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS Books
    • ERS publications home

Login

European Respiratory Society

Advanced Search

  • Home
  • Current issue
  • Early View
  • Archive
  • Authors/reviewers
    • Instructions for authors
    • Submit a manuscript
    • COVID-19 submission information
    • Institutional open access agreements
    • Peer reviewer login
  • Alerts
  • Subscriptions

“You can do it yourself and you can do it at your convenience”: internet accessibility and willingness of people with chronic breathlessness to use an internet-based breathlessness self-management intervention during the COVID-19 pandemic

Charles C. Reilly, Katherine Bristowe, Anna Roach, Matthew Maddocks, Irene J. Higginson
ERJ Open Research 2022 8: 00557-2021; DOI: 10.1183/23120541.00557-2021
Charles C. Reilly
1Dept of Physiotherapy, King's College Hospital, London, UK
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
  • ORCID record for Charles C. Reilly
  • For correspondence: charles.c.reilly@kcl.ac.uk charles.reilly@nhs.net
Katherine Bristowe
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Anna Roach
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Matthew Maddocks
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Irene J. Higginson
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
  • ORCID record for Irene J. Higginson
  • Article
  • Figures & Data
  • Info & Metrics
  • PDF
Loading

Figures

  • Tables
  • FIGURE 1
    • Download figure
    • Open in new tab
    • Download powerpoint
    FIGURE 1

    Barriers and enablers to the use of an online digital intervention for chronic breathlessness (SELF-BREATHE). IT: information technology.

Tables

  • Figures
  • TABLE 1

    Patient characteristics, internet access, use and willingness to use an online supportive breathlessness intervention (SELF-BREATHE)

    AllInternet usersNon-internet users
    Participants (n)25214
    Age years#70 (47–86)67 (47–84)84 (70–86)
    Age category years
     41–501 (4%)1 (5%)-
     51–606 (24%)6 (24%)-
     61–707 (28%)7 (28%)1 (25%)
     71–806 (24%)6 (24%)-
     81–905 (20%)5 (20%)3 (75%)
    MRC dyspnoea score#3 (2–5)3 (2–4)4 (4–5)
    MRC dyspnoea category
     MRC 26 (24%)6 (29%)-
     MRC 311 (44%)11 (52%)-
     MRC 47 (28%)4 (19%)3 (75%)
     MRC 51 (4%)1 (25%)
    Sex (male: female)15:1013: 82: 2
    Ethnicity
     White21 (84%)17 (81%)4 (100%)
     Asian or Asian British2 (8%)2 (9.5%)0 (0%)
     Black, African, Caribbean or Black British2 (8%)2 (9.5%)0 (0%)
    Primary diagnosis
     COPD13 (52%)10 (48%)3 (75%)
     Lung cancer8 (32%)7 (33%)1(25%)
     Interstitial lung disease3 (12%)3 (14%)0 (0%)
     Bronchiectasis1 (4%)1 (5%)0 (0%)
    Smoking status
     Nonsmoker3 (12%)3 (14%)0 (0%)
     Ex-smoker19 (76%)17 (81%)2 (50%)
     Current smoker3 (12%)1 (5%)2 (50%)
    Living situation
     Alone14 (56%)13 (62%)1 (25%)
     Living with significant other/family11 (44%)8 (38%)3 (75%)
    Support provided by a carer
     Yes5 (20%)2 (9.5%)3 (75%)
     No20 (80%)19 (90.5%)1 (25%)
    Internet access
     Yes21 (84%)21 (100%)0 (0%)
     No4 (16%)4 (100%)
    Mode of accessing the internet
     None4 (16%)0 (0%)4 (100%)
     One7 (28%)7 (33%)0 (0%)
     Two or more14 (56%)14 (67%)0 (0%)
    Confidence in using the internet
     No5 (20%)1 (5%)4 (100%)
     Low6 (24%)6 (28%)0 (0%)
     High14 (56%)14 (67%)0 (0%)
    Would you use SELF-BREATHE?
     No4 (16%)0 (0%)4 (100%)
     Unsure1 (4%)1 (5%)0 (0%)
     Yes, with help setting up4 (16%)4 (19%)0 (0%)
     Yes, definitely16 (64%)16 (76%)0 (0%)

    Data expressed as n (%) unless otherwise indicated. MRC: Medical Research Council. #: denotes data expressed as median (range).

    PreviousNext
    Back to top
    Vol 8 Issue 1 Table of Contents
    ERJ Open Research: 8 (1)
    • Table of Contents
    • Index by author
    Email

    Thank you for your interest in spreading the word on European Respiratory Society .

    NOTE: We only request your email address so that the person you are recommending the page to knows that you wanted them to see it, and that it is not junk mail. We do not capture any email address.

    Enter multiple addresses on separate lines or separate them with commas.
    “You can do it yourself and you can do it at your convenience”: internet accessibility and willingness of people with chronic breathlessness to use an internet-based breathlessness self-management intervention during the COVID-19 pandemic
    (Your Name) has sent you a message from European Respiratory Society
    (Your Name) thought you would like to see the European Respiratory Society web site.
    CAPTCHA
    This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.
    Print
    Citation Tools
    “You can do it yourself and you can do it at your convenience”: internet accessibility and willingness of people with chronic breathlessness to use an internet-based breathlessness self-management intervention during the COVID-19 pandemic
    Charles C. Reilly, Katherine Bristowe, Anna Roach, Matthew Maddocks, Irene J. Higginson
    ERJ Open Research Jan 2022, 8 (1) 00557-2021; DOI: 10.1183/23120541.00557-2021

    Citation Manager Formats

    • BibTeX
    • Bookends
    • EasyBib
    • EndNote (tagged)
    • EndNote 8 (xml)
    • Medlars
    • Mendeley
    • Papers
    • RefWorks Tagged
    • Ref Manager
    • RIS
    • Zotero
    Share
    “You can do it yourself and you can do it at your convenience”: internet accessibility and willingness of people with chronic breathlessness to use an internet-based breathlessness self-management intervention during the COVID-19 pandemic
    Charles C. Reilly, Katherine Bristowe, Anna Roach, Matthew Maddocks, Irene J. Higginson
    ERJ Open Research Jan 2022, 8 (1) 00557-2021; DOI: 10.1183/23120541.00557-2021
    del.icio.us logo Digg logo Reddit logo Technorati logo Twitter logo CiteULike logo Connotea logo Facebook logo Google logo Mendeley logo
    Full Text (PDF)

    Jump To

    • Article
      • Abstract
      • Abstract
      • Introduction
      • Methods
      • Results
      • Discussion
      • Footnotes
      • References
    • Figures & Data
    • Info & Metrics
    • PDF

    Subjects

    • COPD and smoking
    • Tweet Widget
    • Facebook Like
    • Google Plus One

    More in this TOC Section

    Original research article

    • Delineating associations of progressive pleuroparenchymal fibroelastosis in patients with pulmonary fibrosis
    • Incidence of cognitive impairment and dementia after hospitalisation for pneumonia: a UK population-based matched cohort study
    • Validation of the HULL Score clinical prediction rule (CPR) for unsuspected pulmonary embolism in ambulatory cancer patients
    Show more Original research article

    COVID-19

    • Inspiratory muscle strength/function in COVID-19 survivors
    • cDPP3, bio-ADM and outcomes in critical COVID-19 patients
    • Multidisciplinary rehabilitation in intensive COVID-19 care
    Show more COVID-19

    Related Articles

    Navigate

    • Home
    • Current issue
    • Archive

    About ERJ Open Research

    • Editorial board
    • Journal information
    • Press
    • Permissions and reprints
    • Advertising

    The European Respiratory Society

    • Society home
    • myERS
    • Privacy policy
    • Accessibility

    ERS publications

    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS books online
    • ERS Bookshop

    Help

    • Feedback

    For authors

    • Instructions for authors
    • Publication ethics and malpractice
    • Submit a manuscript

    For readers

    • Alerts
    • Subjects
    • RSS

    Subscriptions

    • Accessing the ERS publications

    Contact us

    European Respiratory Society
    442 Glossop Road
    Sheffield S10 2PX
    United Kingdom
    Tel: +44 114 2672860
    Email: journals@ersnet.org

    ISSN

    Online ISSN: 2312-0541

    Copyright © 2023 by the European Respiratory Society