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Developing a conceptual model of symptoms and impacts in progressive fibrosing interstitial lung disease to evaluate patient-reported outcome measures

Marlies Wijsenbeek, Maria Molina-Molina, Olivier Chassany, John Fox, Liam Galvin, Klaus Geissler, Katherine M. Hammitt, Michael Kreuter, Teng Moua, Emily C. O'Brien, Ashley F. Slagle, Anna Krasnow, Matthew Reaney, Michael Baldwin, Natalia Male, Klaus B. Rohr, Jeff Swigris, Katerina Antoniou
ERJ Open Research 2022 8: 00681-2021; DOI: 10.1183/23120541.00681-2021
Marlies Wijsenbeek
1Dept of Respiratory Medicine, Erasmus University Medical Centre, Rotterdam, The Netherlands
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  • For correspondence: m.wijsenbeek-lourens@erasmusmc.nl
Maria Molina-Molina
2Dept of Pneumology, Unit of Interstitial Lung Diseases, University Hospital of Bellvitge, Institute for Biomedical Research (IDIBELL), Barcelona, Spain
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Olivier Chassany
3Patient-Reported Outcomes Research Unit, Université de Paris, Paris, France
4Health Economics Clinical Trial Unit (URC-ECO), Hotel-Dieu Hospital, AP-HP, Paris, France
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John Fox
5Foxworthy Healthcare Consulting, Ada, MI, USA
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Liam Galvin
6European Idiopathic Pulmonary Fibrosis and Related Disorders Federation, Overijse, Belgium
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Klaus Geissler
7Patient Support Group, Lungenfibrose eV, Essen, Germany
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Katherine M. Hammitt
8Sjögren's Foundation, Reston, VA, USA
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Michael Kreuter
9Center for Interstitial and Rare Lung Diseases, Department of Pneumology, Thoraxklinik, University of Heidelberg, Member of the German Center for Lung Research, Heidelberg, Germany
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  • ORCID record for Michael Kreuter
Teng Moua
10Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, USA
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Emily C. O'Brien
11Duke Clinical Research Institute, Durham, NC, USA
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Ashley F. Slagle
12Aspen Consulting, LLC, Steamboat Springs, CO, USA
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Anna Krasnow
13Patient Centred Solutions, IQVIA, London, UK
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Matthew Reaney
14Patient Centred Solutions, IQVIA, Reading, UK
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Michael Baldwin
15Boehringer Ingelheim International GmbH, Ingelheim am Rhein, Germany
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Natalia Male
15Boehringer Ingelheim International GmbH, Ingelheim am Rhein, Germany
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Klaus B. Rohr
15Boehringer Ingelheim International GmbH, Ingelheim am Rhein, Germany
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Jeff Swigris
16National Jewish Health, Denver, CO, USA
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Katerina Antoniou
17Laboratory of Cellular and Molecular Pneumonology, Dept of Respiratory Medicine, School of Medicine, University of Crete, Crete, Greece
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Article Information

vol. 8 no. 2
DOI 
https://doi.org/10.1183/23120541.00681-2021

Published By 
European Respiratory Society
Online ISSN 
2312-0541
History 
  • Received December 2, 2021
  • Accepted March 4, 2022
  • Published online May 3, 2022.

Article Versions

  • previous version (April 21, 2022 - 08:27).
  • You are viewing the most recent version of this article.
Copyright & Usage 
Copyright ©The authors 2022 This article is open access and distributed under the terms of the Creative Commons Attribution Licence 4.0.

Author Information

  1. Marlies Wijsenbeek1⇑,
  2. Maria Molina-Molina2,
  3. Olivier Chassany3,4,
  4. John Fox5,
  5. Liam Galvin6,
  6. Klaus Geissler7,
  7. Katherine M. Hammitt8,
  8. Michael Kreuter9,
  9. Teng Moua10,
  10. Emily C. O'Brien11,
  11. Ashley F. Slagle12,
  12. Anna Krasnow13,
  13. Matthew Reaney14,
  14. Michael Baldwin15,
  15. Natalia Male15,
  16. Klaus B. Rohr15,
  17. Jeff Swigris16 and
  18. Katerina Antoniou17
  1. 1Dept of Respiratory Medicine, Erasmus University Medical Centre, Rotterdam, The Netherlands
  2. 2Dept of Pneumology, Unit of Interstitial Lung Diseases, University Hospital of Bellvitge, Institute for Biomedical Research (IDIBELL), Barcelona, Spain
  3. 3Patient-Reported Outcomes Research Unit, Université de Paris, Paris, France
  4. 4Health Economics Clinical Trial Unit (URC-ECO), Hotel-Dieu Hospital, AP-HP, Paris, France
  5. 5Foxworthy Healthcare Consulting, Ada, MI, USA
  6. 6European Idiopathic Pulmonary Fibrosis and Related Disorders Federation, Overijse, Belgium
  7. 7Patient Support Group, Lungenfibrose eV, Essen, Germany
  8. 8Sjögren's Foundation, Reston, VA, USA
  9. 9Center for Interstitial and Rare Lung Diseases, Department of Pneumology, Thoraxklinik, University of Heidelberg, Member of the German Center for Lung Research, Heidelberg, Germany
  10. 10Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, USA
  11. 11Duke Clinical Research Institute, Durham, NC, USA
  12. 12Aspen Consulting, LLC, Steamboat Springs, CO, USA
  13. 13Patient Centred Solutions, IQVIA, London, UK
  14. 14Patient Centred Solutions, IQVIA, Reading, UK
  15. 15Boehringer Ingelheim International GmbH, Ingelheim am Rhein, Germany
  16. 16National Jewish Health, Denver, CO, USA
  17. 17Laboratory of Cellular and Molecular Pneumonology, Dept of Respiratory Medicine, School of Medicine, University of Crete, Crete, Greece
  1. Corresponding author: Marlies Wijsenbeek (m.wijsenbeek-lourens{at}erasmusmc.nl)
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Funding

  • Boehringer Ingelheim

    N/A

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Developing a conceptual model of symptoms and impacts in progressive fibrosing interstitial lung disease to evaluate patient-reported outcome measures
Marlies Wijsenbeek, Maria Molina-Molina, Olivier Chassany, John Fox, Liam Galvin, Klaus Geissler, Katherine M. Hammitt, Michael Kreuter, Teng Moua, Emily C. O'Brien, Ashley F. Slagle, Anna Krasnow, Matthew Reaney, Michael Baldwin, Natalia Male, Klaus B. Rohr, Jeff Swigris, Katerina Antoniou
ERJ Open Research Apr 2022, 8 (2) 00681-2021; DOI: 10.1183/23120541.00681-2021

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Developing a conceptual model of symptoms and impacts in progressive fibrosing interstitial lung disease to evaluate patient-reported outcome measures
Marlies Wijsenbeek, Maria Molina-Molina, Olivier Chassany, John Fox, Liam Galvin, Klaus Geissler, Katherine M. Hammitt, Michael Kreuter, Teng Moua, Emily C. O'Brien, Ashley F. Slagle, Anna Krasnow, Matthew Reaney, Michael Baldwin, Natalia Male, Klaus B. Rohr, Jeff Swigris, Katerina Antoniou
ERJ Open Research Apr 2022, 8 (2) 00681-2021; DOI: 10.1183/23120541.00681-2021
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