Skip to main content

Main menu

  • Home
  • Current issue
  • Early View
  • Archive
  • Authors/reviewers
    • Instructions for authors
    • Submit a manuscript
    • Institutional open access agreements
    • Peer reviewer login
  • Alerts
  • Subscriptions
  • ERS Publications
    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS Books
    • ERS publications home

User menu

  • Log in
  • Subscribe
  • Contact Us
  • My Cart

Search

  • Advanced search
  • ERS Publications
    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS Books
    • ERS publications home

Login

European Respiratory Society

Advanced Search

  • Home
  • Current issue
  • Early View
  • Archive
  • Authors/reviewers
    • Instructions for authors
    • Submit a manuscript
    • Institutional open access agreements
    • Peer reviewer login
  • Alerts
  • Subscriptions

“The whole of humanity has lungs, doesn't it? We are not all the same sort of people”: patient preferences and choices for an online, self-guided chronic breathlessness supportive intervention: SELF-BREATHE

Charles C. Reilly, Katherine Bristowe, Anna Roach, Trudie Chalder, Matthew Maddocks, Irene J. Higginson
ERJ Open Research 2022 8: 00093-2022; DOI: 10.1183/23120541.00093-2022
Charles C. Reilly
1Dept of Physiotherapy, King's College Hospital, London, UK
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
  • ORCID record for Charles C. Reilly
  • For correspondence: charles.c.reilly@kcl.ac.uk
Katherine Bristowe
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Anna Roach
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Trudie Chalder
3King's College London, Institute of Psychiatry, Dept of Psychological Medicine, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Matthew Maddocks
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Irene J. Higginson
2Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
  • ORCID record for Irene J. Higginson
  • Article
  • Figures & Data
  • Info & Metrics
  • PDF
Loading

Figures

  • Tables
  • FIGURE 1
    • Download figure
    • Open in new tab
    • Download powerpoint
    FIGURE 1

    SELF-BREATHE is underpinned by Leventhal's common-sense model of self-regulation, where patient health beliefs (positive and negative) determine behavioural response and coping strategies in response to illness, consequently resulting in positive or negative outcomes. Interventional components of SELF-BREATHE target modifiable factors, i.e. patient health beliefs and behaviours to improve patient outcomes. Bi-directional arrows suggest the beneficial health impacts and reductions in healthcare utilisation.

Tables

  • Figures
  • TABLE 1

    Patient characteristics of the individuals living with chronic breathlessness due to advanced disease who took part in the semi-structured interviews

    AllInternet usersNon-internet users
    Patients n25214
    Age, years70 (47–86)67 (47–84)84 (70–86)
    Age category
     41–501 (4%)1 (5%)
     51–606 (24%)6 (29%)
     61–707 (28%)6 (29%)1 (25%)
     71–806 (24%)6 (29%)
     81–905 (20%)2 (10%)3 (75%)
    MRC dyspnoea score3 (2–5)3 (2–4)4 (4–5)
    MRC dyspnoea category
     MRC 26 (24%)6 (29%)
     MRC 311 (44%)11 (52%)
     MRC 47 (28%)4 (19%)3 (75%)
     MRC 51 (4%)1 (25%)
    Sex (male:female) n:n15:1013:82:2
    Ethnicity
     White21 (84%)17 (81%)4 (100%)
     Asian or Asian British2 (8%)2 (9.5%)0 (0%)
     Black, African, Caribbean or Black British2 (8%)2 (9.5%)0 (0%)
    Primary diagnosis
     COPD13 (52%)10 (48%)3 (75%)
     Lung cancer8 (32%)7 (33%)1 (25%)
     ILD3 (12%)3 (14%)0 (0%)
     Bronchiectasis1 (4%)1 (5%)0 (0%)
    Smoking status
     Nonsmoker3 (12%)3 (14%)0 (0%)
     Ex-smoker19 (76%)17 (81%)2 (50%)
     Current smoker3 (12%)1 (5%)2 (50%)
    Living situation
     Living alone14 (56%)13 (62%)1 (25%)
     Living with significant other/family11 (44%)8 (38%)3 (75%)
    Support provided by a carer
     Yes5 (20%)2 (9.5%)3 (75%)
     No20 (80%)19 (90.5%)1 (25%)

    Data are presented as n (%) or median (range), unless otherwise stated. MRC: Medical Research Council; ILD: interstitial lung disease.

    PreviousNext
    Back to top
    Vol 8 Issue 3 Table of Contents
    ERJ Open Research: 8 (3)
    • Table of Contents
    • Index by author
    Email

    Thank you for your interest in spreading the word on European Respiratory Society .

    NOTE: We only request your email address so that the person you are recommending the page to knows that you wanted them to see it, and that it is not junk mail. We do not capture any email address.

    Enter multiple addresses on separate lines or separate them with commas.
    “The whole of humanity has lungs, doesn't it? We are not all the same sort of people”: patient preferences and choices for an online, self-guided chronic breathlessness supportive intervention: SELF-BREATHE
    (Your Name) has sent you a message from European Respiratory Society
    (Your Name) thought you would like to see the European Respiratory Society web site.
    CAPTCHA
    This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.
    Print
    Citation Tools
    “The whole of humanity has lungs, doesn't it? We are not all the same sort of people”: patient preferences and choices for an online, self-guided chronic breathlessness supportive intervention: SELF-BREATHE
    Charles C. Reilly, Katherine Bristowe, Anna Roach, Trudie Chalder, Matthew Maddocks, Irene J. Higginson
    ERJ Open Research Jul 2022, 8 (3) 00093-2022; DOI: 10.1183/23120541.00093-2022

    Citation Manager Formats

    • BibTeX
    • Bookends
    • EasyBib
    • EndNote (tagged)
    • EndNote 8 (xml)
    • Medlars
    • Mendeley
    • Papers
    • RefWorks Tagged
    • Ref Manager
    • RIS
    • Zotero
    Share
    “The whole of humanity has lungs, doesn't it? We are not all the same sort of people”: patient preferences and choices for an online, self-guided chronic breathlessness supportive intervention: SELF-BREATHE
    Charles C. Reilly, Katherine Bristowe, Anna Roach, Trudie Chalder, Matthew Maddocks, Irene J. Higginson
    ERJ Open Research Jul 2022, 8 (3) 00093-2022; DOI: 10.1183/23120541.00093-2022
    del.icio.us logo Digg logo Reddit logo Technorati logo Twitter logo CiteULike logo Connotea logo Facebook logo Google logo Mendeley logo
    Full Text (PDF)

    Jump To

    • Article
      • Abstract
      • Abstract
      • Introduction
      • Methods
      • Results
      • Discussion
      • Footnotes
      • References
    • Figures & Data
    • Info & Metrics
    • PDF
    • Tweet Widget
    • Facebook Like
    • Google Plus One

    More in this TOC Section

    Original research articles

    • Machine learning for PH differential diagnosis
    • Early disease phenotypes in COPD
    • Risk score to increase detection of severe α1-ATD
    Show more Original research articles

    Dyspnoea

    • Exercise LVEDP versus PAWP to diagnose HFpEF
    • Role of small airway dysfunction in unexplained exertional dyspnoea
    • SELF-BREATHE
    Show more Dyspnoea

    Related Articles

    Navigate

    • Home
    • Current issue
    • Archive

    About ERJ Open Research

    • Editorial board
    • Journal information
    • Press
    • Permissions and reprints
    • Advertising

    The European Respiratory Society

    • Society home
    • myERS
    • Privacy policy
    • Accessibility

    ERS publications

    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS books online
    • ERS Bookshop

    Help

    • Feedback

    For authors

    • Instructions for authors
    • Publication ethics and malpractice
    • Submit a manuscript

    For readers

    • Alerts
    • Subjects
    • RSS

    Subscriptions

    • Accessing the ERS publications

    Contact us

    European Respiratory Society
    442 Glossop Road
    Sheffield S10 2PX
    United Kingdom
    Tel: +44 114 2672860
    Email: journals@ersnet.org

    ISSN

    Online ISSN: 2312-0541

    Copyright © 2023 by the European Respiratory Society