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What is important for people with NTM? An EMBARC-ELF patient survey

Michal Shteinberg, Jeanette Boyd, Stefano Aliberti, Eva Polverino, Bridget Harris, Tove Berg, Annette Posthumus, Thomas Ruddy, Pieter Goeminne, Ernie Lloyd, Timothy Alan, Josje Altenburg, Barbara Crossley, Francesco Blasi, James Chalmers
ERJ Open Research 2020; DOI: 10.1183/23120541.00807-2020
Michal Shteinberg
1Pulmonology Institute and CF center, Carmel Medical Center and the Technion, Israel Institute of Technology, Haifa, Israel
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  • For correspondence: michalsh@technion.ac.il
Jeanette Boyd
2European Lung Foundation, Sheffield, UK
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Stefano Aliberti
3Department of Pathophysiology and Transplantation, University of Milan, and Internal Medicine Department, Respiratory Unit and Cystic Fibrosis Adult Center, Milan, Italy
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Eva Polverino
4Pneumology Department, Hospital Universitari Vall d'Hebron, Barcelona, Spain
5Thorax Institute, Institute of Biomedical Research August Pi i Sunyer, University of Barcelona, Barcelona, Spain
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Bridget Harris
6European Lung Foundation Bronchiectasis patient advisory group, Edinburgh, UK
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Tove Berg
6European Lung Foundation Bronchiectasis patient advisory group, Edinburgh, UK
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Annette Posthumus
6European Lung Foundation Bronchiectasis patient advisory group, Edinburgh, UK
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Thomas Ruddy
6European Lung Foundation Bronchiectasis patient advisory group, Edinburgh, UK
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Pieter Goeminne
7Department of Respiratory Medicine, AZ Nikolaas, Sint-Niklaas, Belgium
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Ernie Lloyd
6European Lung Foundation Bronchiectasis patient advisory group, Edinburgh, UK
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Timothy Alan
6European Lung Foundation Bronchiectasis patient advisory group, Edinburgh, UK
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Josje Altenburg
8Department of Respiratory Medicine, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, Netherlands
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Barbara Crossley
6European Lung Foundation Bronchiectasis patient advisory group, Edinburgh, UK
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Francesco Blasi
3Department of Pathophysiology and Transplantation, University of Milan, and Internal Medicine Department, Respiratory Unit and Cystic Fibrosis Adult Center, Milan, Italy
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James Chalmers
9Scottish Centre for Respiratory Research, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK
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Footnotes

This manuscript has recently been accepted for publication in the ERJ Open Research. It is published here in its accepted form prior to copyediting and typesetting by our production team. After these production processes are complete and the authors have approved the resulting proofs, the article will move to the latest issue of the ERJOR online. Please open or download the PDF to view this article.

Conflict of interest: Dr. Shteinberg reports grants, personal fees and non-financial support from GSK, grants and personal fees from Novartis, personal fees from Bohringer- Ingelheim, personal fees from Astra Zeneca, personal fees from Kamada, personal fees from Vertex pharmaceuticals, personal fees from Teva, non-financial support from Actelion, grants, personal fees and non-financial support from GSK, grants from Novartis, non-financial support from Rafa, grants from Trudell pharma, outside the submitted work.

Conflict of interest: Jeanette Boyd reports and Employee of the European Lung Foundation.

Conflict of interest: S. Aliberti reports advisory fees and research support from Bayer Healthcare; speaker fees from Grifols; advisory fees from Astra Zeneca ; advisory and speaker fees from Zambon; advisory and speaker fees, and research support from Chiesi and Insmed; advisory and speaker fees from GlaxoSmithKline; speaker fees from Menarini; advisory fees from ZetaCube Srl; and research support from Fisher & Paykel, all outside the submitted work.Dr. Aliberti reports grants and personal fees from Bayer Healthcare, grants and personal fees from Aradigm Corporation, grants and personal fees from Grifols, personal fees from Astra Zeneca, personal fees from Basilea, personal fees from Zambon, personal fees from Novartis, personal fees from Raptor, grants and personal fees from Chiesi, personal fees from Actavis UK Ltd, personal fees from Horizon, grants and personal fees from INSMED, outside the submitted work;. Dr. Aliberti reports grants and personal fees from Bayer Healthcare, grants and personal fees from Aradigm Corporation, grants and personal fees from Grifols, personal fees from Astra Zeneca, personal fees from Basilea, personal fees from Zambon, personal fees from Novartis, personal fees from Raptor, grants and personal fees from Chiesi, personal fees from Actavis UK Ltd, personal fees from Horizon, grants and personal fees from INSMED, outside the submitted work;. Dr. Aliberti reports grants and personal fees from Bayer Healthcare, grants and personal fees from Aradigm Corporation, grants and personal fees from Grifols, personal fees from Astra Zeneca, personal fees from Basilea, personal fees from Zambon, personal fees from Novartis, personal fees from Raptor, grants and personal fees from Chiesi, personal fees from Actavis UK Ltd, personal fees from Horizon, grants and personal fees from INSMED, outside the submitted work;. Dr. Aliberti reports personal fees from Bayer Healthcare, personal fees from Grifols, personal fees from Astra Zeneca, personal fees from Zambon, grants and personal fees from Chiesi, grants and personal fees from INSMED, personal fees from GlaxoSmithKline, personal fees from Menarini, personal fees from ZetaCube Srl, grants from Fisher & Paykel, outside the submitted work;.

Conflict of interest:

Conflict of interest: Dr. Harris has nothing to disclose.

Conflict of interest: Tove Berg has nothing to disclose.

Conflict of interest: Annette Posthumus has nothing to disclose.

Conflict of interest: Mr. Ruddy has nothing to disclose.

Conflict of interest: Dr. Goeminne has nothing to disclose.

Conflict of interest:

Conflict of interest: Alan Timothy has nothing to disclose.

Conflict of interest: Dr. Altenburg has nothing to disclose.

Conflict of interest: Mrs. Crossley has nothing to disclose.

Conflict of interest: F. Blasi reports a research grant and an advisory fee from AstraZeneca; a research grant from Bayer; research grants and advisory fees from Chiesi and GSK; advisory fees from Grifols, Guidotti and Insmed; a research grant and an advisory fee from Menarini; an advisory fee from Novartis; a research grant and an advisory fee from Pfizer; and advisory fees from Zambon and Vertex, all outside the submitted work.

Conflict of interest: Dr. Chalmers reports grants and personal fees from Astrazeneca, grants and personal fees from Boehringer Ingelheim, personal fees from Chiesi, grants and personal fees from Glaxosmithkline, grants from Gilead Sciences, grants and personal fees from Insmed, personal fees from Novartis, personal fees from Zambon, outside the submitted work;.

This is a PDF-only article. Please click on the PDF link above to read it.

  • Received October 30, 2020.
  • Accepted November 18, 2020.
  • Copyright ©ERS 2020
http://creativecommons.org/licenses/by-nc/4.0/

This article is open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.

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What is important for people with NTM? An EMBARC-ELF patient survey
Michal Shteinberg, Jeanette Boyd, Stefano Aliberti, Eva Polverino, Bridget Harris, Tove Berg, Annette Posthumus, Thomas Ruddy, Pieter Goeminne, Ernie Lloyd, Timothy Alan, Josje Altenburg, Barbara Crossley, Francesco Blasi, James Chalmers
ERJ Open Research Jan 2020, 00807-2020; DOI: 10.1183/23120541.00807-2020

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What is important for people with NTM? An EMBARC-ELF patient survey
Michal Shteinberg, Jeanette Boyd, Stefano Aliberti, Eva Polverino, Bridget Harris, Tove Berg, Annette Posthumus, Thomas Ruddy, Pieter Goeminne, Ernie Lloyd, Timothy Alan, Josje Altenburg, Barbara Crossley, Francesco Blasi, James Chalmers
ERJ Open Research Jan 2020, 00807-2020; DOI: 10.1183/23120541.00807-2020
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