RT Journal Article SR Electronic T1 Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective JF ERJ Open Research JO erjor FD European Respiratory Society SP 00102-2015 DO 10.1183/23120541.00102-2015 VO 2 IS 2 A1 Bassi, Iris A1 Hollis, Gill A1 Cottin, Vincent A1 Harari, Sergio A1 Zwanenburg, Elma A1 Veltkamp, Marcel A1 Casanova, Alvaro A1 Fletcher, Monica A1 Masefield, Sarah A1 Powell, Pippa A1 Boyd, Jeanette YR 2016 UL https://publications.ersnet.org//content/2/2/00102-2015.abstract AB Lymphangioleiomyomatosis (LAM) is a rare lung disease that almost exclusively affects women and develops in about one in 400 000 adult females. The European Lung Foundation worked closely with one of the patient organisations within its network, the European LAM Federation, to raise awareness of LAM at the 2014 European Respiratory Society International Congress in Munich, Germany. In addition, an invitation-only workshop with 45 individuals from 13 countries was held to discuss the priorities for women in Europe living with the disease. The need for ongoing collaboration to improve knowledge of this rare lung condition with healthcare professionals across Europe was highlighted.Patient organisations and @EuropeanLung have surveyed the priorities of people living with LAM http://ow.ly/10gTld