RT Journal Article SR Electronic T1 Clinical and research priorities for children and young people with bronchiectasis: an international roadmap JF ERJ Open Research JO erjor FD European Respiratory Society SP 00122-2021 DO 10.1183/23120541.00122-2021 VO 7 IS 3 A1 Anne B. Chang A1 Jeanette Boyd A1 Leanne Bell A1 Vikas Goyal A1 I. Brent Masters A1 Zena Powell A1 Christine Wilson A1 Angela Zacharasiewicz A1 Efthymia Alexopoulou A1 Andrew Bush A1 James D. Chalmers A1 Rebecca Fortescue A1 Adam T. Hill A1 Bulent Karadag A1 Fabio Midulla A1 Gabrielle B. McCallum A1 Deborah Snijders A1 Woo-Jung Song A1 Thomy Tonia A1 Keith Grimwood A1 Ahmad Kantar YR 2021 UL http://openres.ersjournals.com/content/7/3/00122-2021.abstract AB The global burden of children and young people (CYP) with bronchiectasis is being recognised increasingly. They experience a poor quality of life and recurrent respiratory exacerbations requiring additional treatment, including hospitalisation. However, there are no published data on patient-driven clinical needs and/or research priorities for paediatric bronchiectasis.Parent/patient-driven views are required to understand the clinical needs and research priorities to inform changes that benefit CYP with bronchiectasis and reduce their disease burden. The European Lung Foundation and the European Respiratory Society Task Force for paediatric bronchiectasis created an international roadmap of clinical and research priorities to guide, and as an extension of, the clinical practice guideline.This roadmap was based on two global web-based surveys. The first survey (10 languages) was completed by 225 respondents (parents of CYP with bronchiectasis and adults with bronchiectasis diagnosed in childhood) from 21 countries. The parent/patient survey encompassed both clinical and research priorities. The second survey, completed by 258 health practitioners from 54 countries, was limited to research priorities.The two highest clinical needs expressed by parents/patients were: having an action management plan for flare-ups/exacerbations and access to physiotherapists. The two highest health practitioners’ research priorities related to eradication of airway pathogens and optimal airway clearance techniques. Based on both surveys, the top 10 research priorities were derived, and unanimous consensus statements were formulated from these priorities.This document addresses parents'/patients' clinical and research priorities from both the parents'/patients' and clinicians' perspectives and will help guide research and clinical efforts to improve the lives of people with bronchiectasis.This document is an international roadmap on parents’/patients’ clinical and research priorities from both the parents’/patients’ and clinicians’ perspectives to help guide research and clinical efforts to improve the lives of people with bronchiectasis https://bit.ly/3xoonwi