TY - JOUR T1 - Family planning, pregnancy and birth in women with lung conditions: a worldwide survey JF - ERJ Open Research JO - erjor DO - 10.1183/23120541.00357-2021 VL - 7 IS - 4 SP - 00357-2021 AU - Clare Williams AU - Barbara Johnson AU - Peter G. Middleton AU - Vibeke Backer AU - Peter G. Gibson AU - Gill Hollis AU - Courtney Coleman Y1 - 2021/10/01 UR - http://openres.ersjournals.com/content/7/4/00357-2021.abstract N2 - Lung diseases can complicate pregnancy, but little is known about the experiences of pregnancy among women living with such diseases. This survey aimed to understand the experiences of women with a lung condition before and during pregnancy, in childbirth and post-partum.The survey was translated into nine languages and hosted online between March and May 2018. This paper reports on 327 women who had asthma, cystic fibrosis (CF), lymphangioleiomyomatosis (LAM) and sarcoidosis as a sole or primary lung condition.Women with CF and LAM were most likely to report that their condition influenced their decision to have children. Those with CF and LAM who did become pregnant reported greater satisfaction with their healthcare during pregnancy and gave more consideration to factors such as location and type of birth; they were also more concerned about the impact of the pregnancy on their health than women with other diseases. Women with sarcoidosis reported receiving conflicting advice as to both the impact of their condition on pregnancy and how becoming pregnant might impact their health. Women with asthma reported not always being able to access the information they needed from healthcare professionals.The results suggest that healthcare providers should be having dialogues with affected women early on, from before conception, throughout the pregnancy and after giving birth, and training should be provided to healthcare staff to equip them with the information they need to do this.This survey found that having a lung condition can play a significant role in women's decisions around family planning, pregnancy and birth. Women wanted more specialist support and better information before, during and after pregnancy. https://bit.ly/3CSpHt9 ER -