Patient research priority areas

 How to develop better, noninvasive methods for the early diagnosis of LAM
 How to develop better information about the likely progression of LAM, perhaps through biomarkers
 How does oestrogen affect LAM?
 An analysis of complications associated with the condition such as gynaecological complications
 Do lymphatics play a role in improved survival?
Drug treatment
 How effective is sirolimus as a preventative drug?
 An analysis of the ovarian toxicity of drugs
 Why do some individuals develop resistance or do not respond to treatment?
  • LAM: lymphangioleiomyomatosis.