Physical symptoms and psychological experiences of lymphangioleiomyomatosis

Primary physical symptomsCommon psychological experiences
Shortness of breath
Low energy (or fatigue)
Sensations in the chest
Loss of identity
Embarrassment or guilt
Healthy defiance against the disease
  • Two of the physical symptoms described were present for all participants in the study: shortness of breath and low energy. Although less commonly mentioned, cough was also present in many participants as well as a sensation of heaviness or aching in the chest. The psychological experiences listed are those that were most commonly described by participants.