Patient survey on experiences relating to pulmonary rehabilitation (PR)

Total number of respondents n1685
What is your age group?
 18–30 years24 (1.4)
 31–50 years287 (17.0)
 51–60 years452 (26.8)
 61–70 years520 (31.4)
 >70 years393 (23.3)
 Not reported9 (0.1)
 Women1229 (72.9)
 Men450 (26.7)
 Not reported6 (0.4)
Have you ever been told about PR by your healthcare provider?
 Yes1009 (59.9)
 No614 (36.4)
 Not sure62 (3.7)
Has a healthcare provider ever discussed the benefits of PR with you?
 Yes939 (55.7)
 No702 (41.7)
 Not sure41 (2.4)
 Not reported3 (0.2)
Have you ever taken part in PR?
 Yes904 (53.6)
 No770 (45.7)
 Not sure10 (0.6)
 Not reported1 (0.1)
If you have taken part in PR, how did you hear about it? You can choose more than one option.
 Healthcare provider807 (89.3)
 On the internet74 (8.2)
 Published literature, such as newspapers or academic journals46 (5.1)
 Pamphlet/flyer30 (3.3)
 Advertisement (on TV, radio or in a magazine)5 (0.6)
 A friend or a family member69 (7.6)
 Someone who had taken part in PR109 (12.1)
If you have taken part in PR, did you….?
 Complete the whole programme777 (86.0)
 Stop early98 (10.8)
 Not reported29 (3.2)
 Reasons for stopping early (if applicable) (individual patient responses below):
  Medical comorbidities/accident
  Costs of the PR programme
  Exacerbation of chronic lung disease
  Death in the family
  Still actively participating in the PR programme
If you have participated in PR, what is the lung condition for which you were referred?
 COPD495 (54.8)
 Pulmonary fibrosis (or interstitial lung disease)201 (22.2)
 Pulmonary hypertension56 (6.2)
 Asthma41 (4.5)
 Cystic fibrosis12 (1.3)
 Bronchiectasis15 (1.7)
 Lung cancer14 (1.6)
 Other (including but not limited to) (individual patient responses below):70 (7.7)
  After pneumonia
  α1-antitrypsin deficiency
  Chronic bronchitis
  After lung transplantation
Do you think that PR should be a part of healthcare services available to all patients that might benefit from it?
 Yes1549 (91.9)
 No3 (0.2)
 Not sure111 (6.6)
 Not reported22 (1.3)
Have you experienced any challenges to taking part in PR? (Multiple answers possible.)
 No challenges670 (39.8)
 Never heard of PR377 (22.4)
 Not enough information to decide whether I want to participate162 (9.6)
 Not sure whether it would help me150 (8.9)
 Worried it might be painful37 (2.2)
 There is no PR service in my area134 (8.0)
 The doctor did not think it would help me44 (2.6)
 Did not qualify for the service in my area38 (2.3)
 Cannot get to the appointments, because the service is too far away52 (3.1)
 Not covered by my insurance93 (5.5)
 Lack of encouragement from the people running the program/staff45 (2.7)
 Family not supportive19 (1.1)
 Low self-confidence or anxiety72 (4.3)
 Other (including, but not limited to) (individual patient responses below):247 (14.7)
  Medical comorbidities
  Disease instability/frequent exacerbations
  Inconvenient PR times (still working/need for childcare)
  PR programme (initially) limited to COPD patients only
  Poor/no PR facilities available
  Exercising with people on oxygen supplements was detrimental
  No/pending approval from insurance
  Lack of clarity in the referral process and reimbursement
  (Co-)pay is too expensive
  Transportation problems
  Patient believes to be too ill to participate in PR
  Patients believes to be active enough/PR not necessary
  Physician unknown with the effects of PR
If you have participated in PR, what do you feel were the major benefits of the programme for you? You can choose more than one option.
 Improved physical functioning in daily life658 (75.8)
 Improved mood or sense of emotional wellbeing439 (48.6)
 Improved knowledge about lung condition474 (52.4)
 Improved control of symptoms416 (46.0)
 Improved social functioning261 (28.9)
 Other (including but not limited to) (individual patient responses below):277 (30.6)
  A combination of the abovementioned improvements
  Improved quality of life
  Improved mobility
  Improved lifestyle
  Improved self-confidence
  Improved understanding of my problems
  No change/improvement

Data are presented as n (%), unless otherwise stated. COPD: chronic obstructive pulmonary disease.