TABLE 1

Interview guide

Opening questionTell me your experiences of living with a partner who had been diagnosed with PAH or CTEPH?
Follow-up questionsPlease tell more about your experiences associated with:
 • Participation (relationship, involvement)
 • Information (communication)
 • Support (practical, emotional, informational, network)
Probing questions were also asked for clarification and to continue the conversation

Based on guidelines from the Swedish Board of Health and Welfare [12].