TABLE 1

Topics identified for patient and carer consultation

By the working groupBy the focus groups
Definitions of mild, moderate and severe IPF
Communication of diagnosis
Misdiagnosis and incorrect treatment
Medication issues
Patient-centred outcomes
Ongoing care and advanced care
New research on diagnosis and treatment
Lung transplantation
Financial impact of IPF
Reliable information and doctor–patient communication
Maximising quality of life
Patient and family support
Exercise and pulmonary rehabilitation

IPF: idiopathic pulmonary fibrosis.