Topics identified for patient and carer consultation
| By the working group | By the focus groups |
| Definitions of mild, moderate and severe IPF Communication of diagnosis Misdiagnosis and incorrect treatment Medication issues Patient-centred outcomes Ongoing care and advanced care New research on diagnosis and treatment | Lung transplantation Financial impact of IPF Reliable information and doctor–patient communication Maximising quality of life Patient and family support Exercise and pulmonary rehabilitation |
IPF: idiopathic pulmonary fibrosis.