TABLEĀ 4

An overview of the common points covered in the idiopathic pulmonary fibrosis (IPF) charters

ThemeEuropeIrelandUKCanada
DiagnosisEarly and accurate diagnosisEarly and accurate diagnosis with multidisciplinary team inputTimely and accurate diagnosis and care involving an appropriately skilled, specialist multidisciplinary teamTimely and accurate diagnosis and care, involving a skilled specialist and a multidisciplinary care team
CareEqual access to careAccess to appropriate medicines and oxygen therapyAccess to seamless, well-integrated health and social care services, including ambulatory and domiciliary oxygen services personalised to the needs of IPF patientsEqual levels of care across Canada based on the best standard of care currently available
InformationComprehensive and high-quality information about the conditionClear and concise information about IPF in plain languageHigh-quality information about the condition, including full details of all treatment, clinical trials, transplant, support and service provision options available to themHigh-quality and accurate information about IPF, including full details of all treatments, clinical trials, support, service provisions and transplant options available to them
HolisticA holistic approach to standardise IPF managementSeamless, well-integrated health and social care services, including timely access to ambulatory and personalised home oxygen services and appropriate IPF medications
SupportAccess to social, practical and emotional supportAccess to dedicated peer support networks, both for patients and their carers, in person or digitallyDedicated in-person or remote peer support networks for patients and their caregivers
Palliative careBetter access to palliative care and end-of-life careSpecialist palliative care and end-of-life care; supported by the Gold Standards Framework where appropriateImproved, more accessible, compassionate palliative and end-of-life care when appropriate
Pulmonary rehabilitation and transplantEarly referral to the National Lung Transplant Unit for lung transplant assessment, with a minimal emphasis on age
Early referral to pulmonary rehabilitation and exercise programmes
Swift access to specialist care and IPF-tailored pulmonary rehabilitation programmes, appropriate prioritisation on transplant waiting lists, and prompt social care assessments and response for patients with exacerbations and rapid disease progression

Bold text highlights where the point specifically relates to communication.