Specific data of diagnostic groups using HIMV in Finland in 2015–2019
All patients (n=141) | Motor neurone disease (n=41) | Spinal cord injury (n=28) | Miscellaneous (n=25) | Muscular diseases (n=21) | Duchenne muscular dystrophy (n=20) | Post-polio syndrome (n=5) | |
Age at diagnosis | 35.8±24.8 | 54.5±10.9 | 41.1±21.1 | 40.4±25.6 | 10.1±14.7 | 9.8±8.4 | 3.2±3.7 |
Age at HIMV initiation years | 42.9±21.2 | 56.5±9.3 | 42.7±21.3 | 44.6±25.5 | 29.7±21.2 | 28.4±9.5 | 25.2±30.2 |
Time from diagnosis to HIMV initiation years | 7.6±12.3 | 2.0±2.4 | 2.4±7.9 | 4.7±8.0 | 18.8±15.8 | 20.5±10.0 | 22.0±32.2 |
Time from HIMV initiation to 1 January 2019 years | 12.3±11.4 | 7.7±5.1 | 9.4±7.9 | 12.0±9.7 | 19.9±13.9 | 11.0±7.7 | 47.3±24.2 |
Lifetime of deceased patient years | 61.7±14.7 | 65.4±9.0 | 58.6±14.7 | 68.4±16.1 | 59.5±15.6 | 33.1±8.5 | 68.0±3.3 |
HIMV duration of deceased patient years | 11.2±12.4 | 9.0±4.1 | 7.4±5.4 | 6.4±1.8 | 22.5±17.1 | 4.6±4.4 | 34.4±43.3 |
Prevalence of HIMV per 100 000 people | 2.0 | 0.5 | 0.4 | 0.4 | 0.3 | 0.3 | 0.0 |
HIMV: home invasive mechanical ventilation. All deceased patients were diagnosed before 1 January 2015.