Collaborating primary ciliary dyskinesia (PCD) support organisations
| PCD support organisation | Country | Contact persons | Website |
| Selbsthilfegruppe Primäre Ciliäre Dyskinesie | Switzerland | Bernhard Rindlisbacher | |
| Verein Kartagener-Syndrom und PCD | Germany | Hansruedi Silberschmidt | www.kartagener-syndrom.org/index.php/verein |
| PCD Family Support Group UK | UK | Lucy Dixon | www.pcdsupport.org.uk |
| PCD Foundation | USA and Canada | Michele Manion | www.pcdfoundation.org |
| PCD Australia Primary Ciliary Dyskinesia | Australia | Catherine Kruljac | www.pcdaustralia.org.au/ |
| Associazione Italiana Discinesia Ciliäre Primaria Sindrome di Kartagener Onlus | Italy | Letizia Andolfi, Sara Bellu | www.pcdkartagener.it/associazione/ |