TABLE 2

Seven rejected statements not included in the infection prevention and control for primary ciliary dyskinesia (PCD) consensus statements

No.AspectStatementConsensus %Voters
1DM“The BEAT-PCD network suggests use of Gram-staining and microscopy as part of clinical microbiological diagnostics at PCD centres where this service is available”78.614/18
2DM“The BEAT-PCD network suggests investigating for viral respiratory infections in case of a clinical exacerbation”72.818/18
3DM“The BEAT-PCD network suggests routine bacterial typing at first positive culture of Achromobacter xylosoxidans71.414/18
4DM“The BEAT-PCD network suggests routine bacterial typing at first positive culture of Pseudomonas aeruginosa57.214/18
5IT“The BEAT-PCD network suggests that cultured Achromobacter xylosoxidans is treated regardless of symptoms and microscopy”66.718/18
6S“The BEAT-PCD network suggests that patients with Achromobacter xylosoxidans should be segregated in outpatient and in-patient settings”77.818/18
7S“The BEAT-PCD network suggests to always have a 30-minute wait between all PCD patients regardless of infection status”72.818/18

Seven proposed consensus statements did not reach consensus during the Delphi process. Each proposed statement was presented for the expert panel using a Likert scale offering five possible response options: “Strongly agree”, “Agree”, “Neutral”, “Disagree”, “Strongly disagree”. “No consensus” was defined as <80% agreement (“Strongly agree” or “Agree”) within the PCD expert panel. DM: diagnostic microbiology aspects; IT: infection treatment aspects; S: segregational aspects. Voters: 18 PCD experts responded to the E-surveys.