Patient characteristics, internet access, use and willingness to use an online supportive breathlessness intervention (SELF-BREATHE)
All | Internet users | Non-internet users | |
Participants (n) | 25 | 21 | 4 |
Age years# | 70 (47–86) | 67 (47–84) | 84 (70–86) |
Age category years | |||
41–50 | 1 (4%) | 1 (5%) | - |
51–60 | 6 (24%) | 6 (24%) | - |
61–70 | 7 (28%) | 7 (28%) | 1 (25%) |
71–80 | 6 (24%) | 6 (24%) | - |
81–90 | 5 (20%) | 5 (20%) | 3 (75%) |
MRC dyspnoea score# | 3 (2–5) | 3 (2–4) | 4 (4–5) |
MRC dyspnoea category | |||
MRC 2 | 6 (24%) | 6 (29%) | - |
MRC 3 | 11 (44%) | 11 (52%) | - |
MRC 4 | 7 (28%) | 4 (19%) | 3 (75%) |
MRC 5 | 1 (4%) | 1 (25%) | |
Sex (male: female) | 15:10 | 13: 8 | 2: 2 |
Ethnicity | |||
White | 21 (84%) | 17 (81%) | 4 (100%) |
Asian or Asian British | 2 (8%) | 2 (9.5%) | 0 (0%) |
Black, African, Caribbean or Black British | 2 (8%) | 2 (9.5%) | 0 (0%) |
Primary diagnosis | |||
COPD | 13 (52%) | 10 (48%) | 3 (75%) |
Lung cancer | 8 (32%) | 7 (33%) | 1(25%) |
Interstitial lung disease | 3 (12%) | 3 (14%) | 0 (0%) |
Bronchiectasis | 1 (4%) | 1 (5%) | 0 (0%) |
Smoking status | |||
Nonsmoker | 3 (12%) | 3 (14%) | 0 (0%) |
Ex-smoker | 19 (76%) | 17 (81%) | 2 (50%) |
Current smoker | 3 (12%) | 1 (5%) | 2 (50%) |
Living situation | |||
Alone | 14 (56%) | 13 (62%) | 1 (25%) |
Living with significant other/family | 11 (44%) | 8 (38%) | 3 (75%) |
Support provided by a carer | |||
Yes | 5 (20%) | 2 (9.5%) | 3 (75%) |
No | 20 (80%) | 19 (90.5%) | 1 (25%) |
Internet access | |||
Yes | 21 (84%) | 21 (100%) | 0 (0%) |
No | 4 (16%) | 4 (100%) | |
Mode of accessing the internet | |||
None | 4 (16%) | 0 (0%) | 4 (100%) |
One | 7 (28%) | 7 (33%) | 0 (0%) |
Two or more | 14 (56%) | 14 (67%) | 0 (0%) |
Confidence in using the internet | |||
No | 5 (20%) | 1 (5%) | 4 (100%) |
Low | 6 (24%) | 6 (28%) | 0 (0%) |
High | 14 (56%) | 14 (67%) | 0 (0%) |
Would you use SELF-BREATHE? | |||
No | 4 (16%) | 0 (0%) | 4 (100%) |
Unsure | 1 (4%) | 1 (5%) | 0 (0%) |
Yes, with help setting up | 4 (16%) | 4 (19%) | 0 (0%) |
Yes, definitely | 16 (64%) | 16 (76%) | 0 (0%) |
Data expressed as n (%) unless otherwise indicated. MRC: Medical Research Council. #: denotes data expressed as median (range).